Patient-Reported Outcome Measures (PROMs) are questionnaires which patients complete. They ask for the patient’s assessment of how health services and interventions have, over time, affected their quality of life, daily functioning, symptom severity, and other dimensions of health which only patients can know. PROMs promise to fill a vital gap in our knowledge about outcomes and about whether healthcare interventions actually make a difference to people’s lives.
On this page you can find a series of three reports which present evidence about the appropriate and meaningful use and implementation of PROMs.
We conducted 27 in-depth interviews with international and Australian experts. We wanted to learn from their experiences with the implementation of large-scale PROMs initiatives.
Through these expert interviews we gathered rich qualitative information about what experts and stakeholders really think about PROMs, their experiences of practical implementation on a large scale, and what has worked or not worked in other countries. Importantly, we were also able to hear about what Australian stakeholders need and want from the Commission.
Overall, findings from analysis of the interviews reinforced and elaborated on findings from the environment scan and literature review. The interview participants also gave us the benefit of their experiences with successful and failed implementations of PROMs in Australia, the Netherlands, the United States, Canada, Sweden and England.
In Australia, PROMs are an emerging method of assessing the quality of health care. While exciting and innovative work is happening in many places, PROMs are not yet embedded in routine measurement at regional, jurisdictional or national level.
In late 2016, the Commission contracted the University of Wollongong to conduct an environmental scan of the Australian healthcare sector. It gives detail about the current situation in Australia regarding the collection and use of patient-reported outcome measures.
To complement this picture of what is happening in Australia, the Commission also contracted the University of Wollongong to complete a literature review, to learn about how PROMs are used in international health systems similar to Australia’s. The intention was to build up a detailed picture of best practice and to learn from other countries’ experiences.
In particular, we were interested in answering four questions:
Appendices with detailed supplementary tables:
The Commission is developing a national PROMs work program to support the consistent and routine use of PROMs to drive quality improvement in a way that brings patients’ voices and outcomes to the fore. This project will involve a consultation process, and more information will appear on this page as the work progresses.
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