ACSQHC-ARCR-217

Prioritised clinical domain
Nil
Abbreviation
APCOR
Registry contact

Dr Lisa Redwood, University of Wollongong, apcor-coord@uow.edu.au

Year established
2024
Description

The Australian Palliative Care Outcomes Registry (APCOR) holds identified clinical data from individuals who have received palliative care across Australia. This data is submitted by participating hospitals and palliative care services to support research and drive improvements in care quality. Originally established as a longitudinal dataset capturing repeated clinical assessments, APCOR has evolved into a formal clinical quality registry. It contains a curated version of the PCOC quality improvement dataset and includes standardised information on patient demographics, diagnoses, symptom burden, functional status, care settings, and outcomes. In addition to supporting national quality improvement efforts, APCOR provides a governed pathway for the release of data to approved external third parties, enabling ethically responsible research and analysis that advances palliative care knowledge and practice.

Reporting process
  • Feedback to contributing clinicians
  • Shared with other clinicians
  • Shared with hospital executive
  • Reported to State/Territory health departments
  • Reported in Annual Report
  • Reported in other public reports
Patient Reported Outcome Measures (PROMs)

The PROMs are measuring the patient experience of pain, breathing problems, difficulty sleeping, appetite problems, nausea, bowel problems and fatigue. These symptoms are recognised as being the most experienced symptoms for palliative care patients.

Symptom Assessment Score, and once version 4 of the PCOC data set is rolled out in late 2025, it will be the Edmonson Symptom Severity System. 

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Australia Capital Territory

  • Canberra Health Services
  • Canberra Hospital – Specialist Palliative Care Consult
  • Clare Holland House

New South Wales

Nepean Blue Mountains Local Health District

  • Nepean Hospital
  • St John of God Health Care: Hawkesbury District Health Service

Northern Sydney Local Health District

  • Royal North Shore Hospital
  • Ryde Hospital
  • Hornsby Hospital
  • Mona Vale Hospital
  • Northern Beaches Hospital
  • Manly Adolescent and Young Adult Hospice

South Eastern Sydney Local Health District

  • Calvary Health Care Kogarah
  • Prince of Wales Hospital

South Western Sydney Local Health District

  • Bowral and District Hospital
  • Camden Hospital (Macarthur Palliative Care Services),
  • Fairfield Hospital Palliative Care Consult
  • Liverpool Hospital

Sydney Local Health District

  • Canterbury Hospital
  • Concord Hospital - Concord Centre for Palliative Care
  • Royal Prince Alfred Hospital (RPA)

Western Sydney Local Health District

  • Auburn Hospital Supportive and Palliative Care Service
  • Blacktown Hospital
  • Mt Druitt Hospital
  • Western Sydney LHD Community Palliative Care
  • Westmead Hospital

Central Coast Local Health District

  • Gosford Hospital
  • Wyong Hospital

Hunter New England Local Health District

  • John Hunter Hospital
  • Maitland Dungog Community Palliative Care Service
  • Manning Rural Referral Hospital
  • Tamworth Base Hospital
  • Tamworth/Nundle Community Health Service

Mid North Coast Local Health District

  • Bellinger River District Hospital
  • Coffs Harbour Community Palliative Care Service
  • Hastings Macleay Community Palliative Care Service
  • Macksville Community Health Centre
  • Wauchope District Memorial Hospital

Western NSW Local Health District

  • Bathurst Health Service
  • Cowra Health Service
  • Dubbo Health Service
  • Lachlan Health Service - Forbes Hospital
  • Lachlan Health Service - Parkes Hospital
  • Mudgee Health Service
  • Orange Health Service

Far West Local Health District

  • Broken Hill Health Service
  • Buronga Specialist Palliative Care Service

Illawarra Shoalhaven Local Health District

  • Bulli Hospital
  • David Berry Hospital
  • Illawarra Shoalhaven Community Specialist Palliative Care Service
  • Shellharbour Hospital
  • Shoalhaven District Memorial Hospital
  • Wollongong Hospital

Murrumbidgee Local Health District

  • Murrumbidgee LHD Palliative Care Service

Southern NSW Local Health District

  • Cooma Hospital

 

  • Arcadia Pittwater Private Hospital
  • Baringa Private Hospital
  • Calvary Health Care Riverina
  • Calvary Mater Newcastle
  • Central Coast Specialist Palliative Care Services
  • Chris O'Brien Lifehouse
  • Forster Private Hospital
  • HammondCare - Braeside Hospital
  • HammondCare - Greenwich Hospital
  • HammondCare - Neringah Hospital
  • HammondCare Community Palliative Care (Incl. Northern Beaches community palliative care),
  • Lourdes Hospital
  • Mater Hospital, North Sydney
  • Mercy Care Centre Young
  • Mercy Health Service Albury
  • Northern Sydney Home Nursing Service
  • Port Kembla Hospital
  • RACF Outreach Community Team
  • Ramsay Health Glengarry Palliative Care Unit/Service
  • RPA Virtual (Sydney District Nursing - Concord, Canterbury, Croydon, Marrickville and Redfern)
  • Silverchain Western Sydney
  • Southern NSW LHD Community Specialist Palliative Care (Goulburn, Eurobodalla, Queanbeyan, Comma & Bega)
  • St Joseph's Hospital
  • St Vincent's Hospital Sydney/ Sacred Heart Palliative Care Service
  • St Vincent's Private Hospital, Lismore
  • Sydney Adventist Hospital
  • Toronto Private Hospital (Aurora Health)
  • Wolper Jewish Hospital
  • Wynnum-Manly PCU

Northern Territory

  • Alice Springs Community Hospice
  • Central Australia Health Service
  • Katherine Hospital
  • Top End Palliative Care Service

Queensland

Cairns and Hinterland Hospital and Health Service (HHS)

  • Cairns & Gordonvale Hospital

Central Queensland Hospital and Health Service (HHS)

  • Rockhampton Base Hospital
  • Gladstone Hospital

Darling Downs Hospital and Health Service (HHS)

  • Toowoomba Hospice
  • Toowoomba Hospital Palliative Care Service

Gold Coast Hospital and Health Service (HHS)

  • Gold Coast Hospital
  • Robina Hospital

Mackay Hospital and Health Service (HHS)

  • Mackay Base Hospital

Metro North Hospital and Health Service (HHS)

  • Royal Brisbane and Women's Hospital
  • Prince Charles Hospital Chermside
  • Caboolture Hospital
  • Redcliffe Hospital Palliative Care Service

Metro South Hospital and Health Service (HHS)

  • QEII Hospital
  • Redland Community Team
  • Metro South Community Palliative Care Service

Sunshine Coast Hospital and Health Service (HHS)

  • Sunshine Coast & Cooloola Palliative Care
  • Caloundra Hospital

Torres and Cape Hospital and Health Service (HHS)

Townsville Hospital and Health Service (HHS)

  • Townsville Hospital
  • Townsville Palliative Care Centre

West Moreton Hospital and Health Service (HHS)

  • Ipswich Hospice
  • Ipswich Hospital
  • Ipswich Nursing Service

Wide Bay Hospital and Health Service (HHS)

  • Bundaberg Palliative Care
  • Hervey Bay & Fraser Coast
  • Maryborough Hospital

 

  • Blue Care
  • Canossa Private Hospital
  • Cittamani Hospice Service
  • Corinda South Brisbane Community Team
  • Fraser Coast Hospice
  • Hopewell Hospice
  • Hospital in Your home
  • Karuna Hospice
  • Katie Rose Cottage Hospice
  • Little Haven Palliative Care Inc
  • Mater Private Brisbane
  • Mater Private Mackay
  • Mt Isa & Surrounds Palliative Care
  • PARAS inpatients Bundaberg Hospital
  • Silverchain Queensland
  • St Vincent's Private Hospital Toowoomba
  • St Vincent’s Hospital Brisbane
  • The Mater Hospital
  • Wesley Private

South Australia

Barossa Hills Fleurieu Local Health Network (LHN)

  • South Coast Palliative Care Service
  • Inner North Palliative Care
  • Adelaide Hills Community Health Service,

Eyre and Far North Local Health Network (LHN)

  • Port Lincoln Palliative Care Service

Flinders and Upper North Local Health Network (LHN)

  • Port Augusta Palliative Care Service
  • Whyalla Palliative Care Service

Limestone Coast Local Health Network (LHN)

  • Limestone Coast LHN Specialist Palliative Care Service

Riverland Mallee Coorong Local Health Network (LHN)

  • Riverland Palliative Care Service

Southern Adelaide Local Health Network (LHN)

  • Southern Adelaide Palliative Services

Yorke and Northern Local Health Network (LHN)

  • Lower North Palliative Care Service
  • Port Pirie Regional Health Service
  • Yorke Peninsula Palliative Care

 

  • Calvary Community Care SA
  • Calvary Health Care Adelaide (Mary Potter Hospice)
  • Central Adelaide Palliative Service
  • Enabling confidence at home community health service
  • Northern Adelaide Palliative Service
  • Royal District Nursing Service - South Australia
  • Stirling District Hospital

Tasmania

  • Calvary Health Care - St Luke's Launceston
  • Calvary Health Care Tasmania - St John's
  • Mersey Community Hospital
  • Palliative Care Service South Tasmania
  • Tasmania Community North
  • Tasmania Community North West

Victoria

  • Anam Cara Geelong
  • Anam Cara House Colac
  • Austin Health Palliative care
  • Bacchus Marsh Community Palliative Care,
  • Ballarat Hospice Care
  • Banksia Palliative Care
  • Barwon Health Palliative care Services
  • Bellarine Community Health
  • Benalla Home Nursing Service
  • Bendigo Health Integrated PCS
  • Cabrini Consult team
  • Cabrini Health
  • Calvary Bethlehem
  • Caritas Christi Kew
  • Colac Area Health - Community Palliative Care
  • East Grampians Health Service
  • Eastern Health Angliss
  • Eastern Health Box Hill
  • Eastern Health Consult Team
  • Eastern Health Maroondah
  • Eastern Health Palliative care Wantirna
  • Eastern Health Palliative Residential Aged Care Consult service (PRACCS)
  • Eastern Palliative Care
  • Echuca Regional Health
  • Fitzroy Hospice
  • Gandarra Palliative Care
  • Goulburn Valley Health
  • Goulburn Valley Hospice Inc.
  • Grampians Community Health Horsham
  • Kyabram District Health Service
  • Latrobe Regional Hospital
  • Logan Community Team
  • Lower Hume Palliative care service Community
  • McCulloch House Supportive and Palliative Care Monash Health
  • Melbourne City Mission Palliative Care
  • Mercy Palliative Care Sunshine
  • Moira Palliative Care Service
  • Murray Mallee
  • Northeast Health Wangaratta Palliative Care
  • Northern Health Broadmeadows - McKenna House Palliative Care
  • Northern Health Palliative Care Consult Team
  • Palliative Aged Care Supportive Service (PACS)
  • Palliative Ambulatory Care Consult Team - Eastern Health
  • Palliative Care South East
  • Peninsula Home Hospice
  • Peter MacCallum Cancer Centre
  • Peter MacCallum Cancer Centre Inpatient Unit
  • Portland District Health - Community Palliative Care
  • Royal Melbourne Hospital (Outlier data)
  • Royal Melbourne Hospital Consult
  • Royal Melbourne Hospital Palliative Care Unit
  • South East Private Hospital
  • South Metropolitan Area Palliative Consultancy
  • South West Healthcare
  • South West Hospital and Health Service
  • St John of God- Berwick Hospital
  • St John of God-Ballarat Hospital
  • St John of God-Bendigo Hospital
  • St John of God-Frankston
  • St John of God Geelong
  • St Vincent's Hospital Fitzroy
  • St Vincent's Hospital Fitzroy Palliative Care Consult
  • Sunraysia Community Health Service
  • Sunshine Hospital Palliative Care Unit
  • Swan Hill Palliative Care Service
  • Tattersalls Peninsula Palliative Care
  • The Alfred Hospital
  • The Northern Hospital
  • Werribee Mercy Hospital (Gabrielle Jenning Centre)
  • Werribee Mercy Hospital PC Consult
  • West Gippsland Community Palliative Care Service
  • Western District Health Service
  • Western Health – Community
  • Wodonga Health Palliative Care Community Service

Western Australia

  • Albany Community Hospice,
  • Bethesda Hospital Palliative Care Unit
  • Bunbury Community
  • Fiona Stanley Hospital Consult Service (including Fremantle Hospital),
  • Geraldton Community (Midwest Regional)
  • Kalamunda Districts Hospital/Armadale Hospital
  • Metropolitan Palliative Care Consultancy Service (MPaCCS)
  • Northam Palliative Care
  • Ramsay Health Joondalup Palliative Care Service
  • Ramsay Health Peel Palliative Care Service
  • Rockingham General Hospital Specialist Palliative Care Consult Service
  • Royal Perth Hospital Specialist Palliative Care Consult Service/inc. Bentley Hospital
  • Silver Chain Community Specialist Palliative Care Service
  • Silver Chain Hospice Care Service WA
  • St John of God - Murdoch Community Hospice
  • St John of God Bunbury
  • St John of God Geraldton
  • St John of God Joondalup
  • St John of God Midland
  • WACHS - Goldfields Regional Palliative Care Service
  • WACHS - Great Southern Regional Palliative Care Service
  • WACHS - Kimberley Regional Palliative Care Service
  • WACHS - Midwest Regional Palliative Care Service
  • WACHS - PalCATS - Palliative Care Telehealth Service
  • WACHS - Pilbara Regional Palliative Care Service
  • WACHS - South West Regional Palliative Care Service
  • WACHS - Wheatbelt Regional Palliative Care Service
Condition
Palliative Care
Name
Australian Palliative Care Outcomes Registry
Weblink

https://www.uow.edu.au/australasian-health-outcomes-consortium/pcoc/research-ethics-and-governance/australian-palliative-care-outcomes-registry/

Lead organisation
University of Wollongong - Palliative Care Outcomes Collaboration (PCOC)
Ethics approval reference
NSW Population & Health Services Research Ethics Committee reference - 2024/ETH02262
Program area
Indicators and measurement
Preferred published date
Immediately
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