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ACSQHC-ARCR-394

Prioritised clinical domain
Nil
Abbreviation
iTestis
Registry contact

A/Prof Ben Tran, The Walter & Eliza Hall Institute of Research, tran.b@wehi.edu.au 

Year established
2018
Description

The iTestis Registry is a national research and clinical quality registry focused primarily on testicular cancer (germ cell cancers of the testes), with additional inclusion of rare retroperitoneal and mediastinal germ cell tumours. The registry captures detailed demographic, clinical, treatment, and outcomes data from participating sites across Australia. It provides a structured, clinician-led platform that supports both continuous quality improvement in clinical care and national research initiatives using real-world data. The registry is governed by the iTestis Steering Committee and supported by ongoing oversight from medical oncologists and other specialists in testicular cancer. iTestis data are routinely used to monitor adherence to evidence-based practice, identify variations in care, and inform educational feedback to contributing centres. The registry also serves as a research platform, supporting national and international collaborations, registry-based studies, and functioning as the electronic case report form (eCRF) backbone for multicentre clinical cohort studies. With a dual focus on research and quality, the iTestis Registry provides a robust infrastructure for advancing understanding and improving outcomes in testicular and related germ cell cancers.

Reporting process
  • Periodic data summaries and reports are provided to contributing sites, allowing clinicians to monitor data quality and performance indicators over time
  • Shared with other clinicians
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

ACT

  • The Canberra Hospital

NSW

  • Calvary Mater Newcastle
  • Chris O'Brien Lifehouse
  • Newcastle Private Hospital
  • Southside Cancer Care Centre

Qld

  • Gold Coast University Hospital
  • Royal Brisbane & Women's Hospital

SA

  • Icon Cancer Centre Adelaide

Vic

  • Austin Health
  • Ballarat Health Services
  • Barwon Health
  • Eastern Health
  • Melbourne Health
  • Monash Medical Centre - Clayton Campus
  • Peter MacCallum Cancer Centre
  • St Vincent's Hospital (Melbourne) Ltd
  • Western Health

Other

Several private consulting suites of Oncologists in Victoria. Contact the registry for further information.

Condition
Testicular cancer
Name
iTestis
Lead organisation
The Walter & Eliza Hall Institute of Medical Research
Ethics approval reference
Royal Melbourne Hospital HREC, HREC/17/MH/400
Preferred published date
Immediately
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