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ACSQHC-ARCR-398

Prioritised clinical domain
High burden cancers
Abbreviation
PCOR-QLD
Registry contact

Heather Day, Clinical Registry Manager, Queensland University of Technology, pcorqld@qut.edu.au

Year established
2016
Description

PCOR-QLD focuses on describing patterns of care following a diagnosis of prostate cancer, monitoring quality of delivered care and whether it is in line with evidence-based guidelines. Population captured: PCOR-QLD is a population-based registry currently capturing 85 percent of all newly diagnosed cases of prostate cancer in Queensland. Outcomes measured: positive margin rate post prostatectomy, documentation of clinical stage, PSA recorded pre-diagnosis, post prostatectomy and 12 months post treatment, advanced disease and appropriate use of active surveillance, patient-reported quality of life measurements at 12 months post treatment or diagnosis (if no treatment has occurred).

Notifications of prostate cancer are obtained from the Queensland Cancer Register for participating institutions and clinicians. Data is collected from public hospital medical records and private clinician's medical records. Data is collected by using a secure web-based portal. Data is collated and bench-marking reports are sent out every six months to participating institutions and clinicians.

Reporting process
  • Reported in Annual Report
  • Shared with clinicians
  • Shared with hospital executive
Patient Reported Outcome Measures (PROMs)

The Expanded Prostate Cancer Index Composite  (EPIC-26)  Short Form - a Quality of Life questionnaire.

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

https://prostatecancerregistry.org/whos-involved/

Queensland

  • Bayside Urology - Private
  • Bowes Urology
  • Brisbane Private Hospital
  • Brisbane Prostate Clinic
  • Brisbane Urology Clinic
  • Buderim Private Hospital
  • Cairns Hospital
  • Coastal Urology Clinic
  • Dr Kenneth P'ng Private Practice
  • Dr Kenny Rao Urology
  • East Coast Urology
  • Genesis Care
  • Gold Coast Private Hospital
  • Gold Coast University Hospital
  • Gold Coast Urology
  • Greenslopes Private Hospital
  • Greenslopes Urology Clinic
  • Ipswich Hospital
  • Ipswich Urology
  • Jamie Reynolds Urology
  • Jo Schoeman Urology
  • Mackay Base Hospital
  • Mackay Urology
  • Mater Hospital Brisbane
  • Mater Hospital Mackay
  • Mater Private Hospital Townsville
  • Northern Urology
  • Northern Urology Clinic
  • Oceanside Urology
  • Patrick Dunne Urology
  • Pioneer Urology
  • Princess Alexandra Hospital
  • QE II Jubilee Hospital
  • Queensland Prostate Clinic
  • Redcliffe Hospital
  • Rockhampton Hospital
  • Royal Brisbane and Women’s Hospital
  • St Andrew's Hospital Toowoomba
  • St Vincent's Private Hospital Northside
  • Sunshine Coast Urology Clinic
  • The Prostate Clinic (Gold Coast)
  • Toowoomba Base Hospital
  • Toowoomba Urology
  • Townsville Hospital
  • Townsville Urology
  • UroBriz
  • UroMed
  • Watson Urology
  • Wesley Hospital
  • Wesley Urology Clinic
Condition
Prostate Cancer
Name
Prostate Cancer Outcomes Registry - Queensland
Lead organisation
Monash University
Ethics approval reference
MetroSouth HREC:HREC/15/QPAH/573
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