Robert Stirling, Monash University, r.stirling@alfred.org.au
Please cc Margaret.brand@monash.edu and med-vlcr@monash.edu
Despite recent improvements in diagnosis and treatment, prognosis for lung cancer remains poor, with a 5-year survival of just 17% and it continues to be the biggest contributor to Australia’s overall cancer burden, as calculated by disability-adjusted life years. The Victorian Lung Cancer Registry (VLCR) is a CQR that captures real-world data for approximately 85% of all patients newly diagnosed with lung cancer in Victoria. The VLCR has continued to expand over the past 8 years and in 2019, the VLCR will collect clinical data care from diverse institutions including public metropolitan hospitals (n=27), private metropolitan hospitals (n=16), public regional hospitals (n=9) and private regional hospitals (n=8).
Purpose: The VLCR aims to identify and reduce unwarranted variation in lung cancer care and to drive continued improvement in the quality of care provided to patients. This registry provides bench-marked risk-adjusted reports to participating sites, reflecting site performance against clinical quality indicators reflecting agreed best practice. Key to the success of the VLCR is the peer reviewed bench-marked data, which is used to motivate change in both institutional and clinical practice.
Population: The VLCR includes all subjects with newly diagnosed Non Small Cell and Small Cell Lung Cancer.
Outcomes: the VLCR provides 22 measures including time to first treatment, mortality after treatment (surgery and chemotherapy), presentation at multi-disciplinary meetings (MDMs), use of supportive care measures (supportive care screening) and referral to palliative care.
- Feedback to contributing clinicians via site Principal Investigator, the VLCR reports are de-identified for treating clinician
- Shared with clinicians
- Reported in Annual Report
- Reported in other public reports
- Shared with consumers
- Shared with hospital executive
- Reported to State health department
Patient Reported Outcome Measures will be collected in 2020. These are assessments of overall health and quality of life as reported by patients at specific time points after diagnosis.
Patient Reported Experience Measures will be collected in 2020.
Victoria
- Alfred Health (Alfred Hospital, Caulfield, Sandringham)
- Austin Health (Austin Health, Heidelberg repat, Royal Talbot, Olivia-Newton John Cancer Centre)
- Eastern Health (Angliss, Box Hill, Maroondah, Peter James)
- Monash Health (Monash Medical Clayton, Casey, Dandenong, Moorabbin)
- Northern Health
- Peninsula Health (Frankston, Rosebud)
- Peter MacCallum Cancer Centre
- Royal Melbourne Hospital (Royal Park, City Campus)
- St Vincent’s Public (St Vincent’s Public, Caritas, St Georges)
- Western Health (Footscray, Sunshine, Williamstown)
- Cabrini Health (Cabrini Malvern, Brighton, Prahran, Elsternwick, Hopetoun)
- Epworth Health (Richmond, Eastern, Freemasons, Geelong, Brighton, Camberwell
- St Vincent’s Private (Fitzroy, East Melbourne)
- Genesis Care (Frankston, Epping, Ringwood)
- Albury Wodonga Health
- Ballarat Hospital
- Barwon Health (Geelong Hospital)
- Bendigo Health
- Goulburn Valley Health
- Latrobe Hospital
- South West Healthcare (Warrnambool, Portland, Hamilton)
- Ramsay Health (Peninsula, Mildura, Border Medical Oncology)
- St John Of God (Geelong, Ballarat, Bendigo, Warrnambool, Berwick)