David Celermajer, Royal Prince Alfred Hospital - Cardiology, David.celermajer@health.nsw.gov.au
The ANZ CHD Registry is an initiative designed to transform care for congenital heart disease (CHD) patients in Australia and New Zealand. This registry will become a comprehensive resource by enrolling over 70,000 CHD patients, encompassing all age groups. This data will quantify the lifelong impact of CHD and shed light on disease progression, current management strategies, and factors affecting health outcomes. The registry will further enhance estimates of CHD prevalence within the ANZ population and evaluate the effectiveness of CHD interventions. Ultimately, these insights will directly inform advancements in CHD care, resource allocation, patient education, and research priorities, aligning perfectly with the National Strategic Action Plan for CHD. This data-driven approach has the potential to revolutionize CHD care and significantly improve the lives of countless patients across Australia and New Zealand.
- Feedback to contributing clinicians
- Shared with consumers
- Reported in Annual Report
- Reported in other public reports
- Other
- Academic Publication
Nil
Nil
New South Wales
- John Hunter Hospital Royal Newcastle Centre
- Royal Prince Alfred Hospital
- The Children's Hospital at Westmead
Queensland
- Queensland Children's Hospital
- The Prince Charles Hospital
South Australia
- The Royal Adelaide Hospital
- Women's And Children's Hospital, Adelaide
Victoria
- Royal Melbourne Hospital - City Campus
- The Royal Children's Hospital, Melbourne
Western Australia
- Perth Children’s Hospital
- Sir Charles Gairdner Hospital
Reference: X17-0441 & 2019/ETH07472