Skip to main content

ACSQHC-ARCR-511

Prioritised clinical domain
Nil
Abbreviation
PHSANZ Registry
Registry contact

Edmund Lau, Royal Prince Alfred Hospital, edmundmtlau@gmail.com

Year established
2011
Description

PHSANZ registry is a binational registry involving Australia and New Zealand. There are currently 25 sites participating in the registry. The registry collects data for patients with pulmonary hypertension (high blood pressure in the lungs). The aims of the PHSANZ registry include assessing the epidemiology of pulmonary hypertension, changes in treatment patterns, and outcome data. Outcome data includes compliance with guideline-directed therapies, survival with benchmarking against international registries, and geographical disparities in outcomes. The PHSANZ registry is also an important tool for patient advocacy and improving models of care.

Reporting process
  • Feedback to contributing clinicians
  • Shared with other clinicians
  • Shared with consumers
  • Reported to State/Territory health departments
  • Reported in Annual Report
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

New South Wales

  • John Hunter Hospital
  • Macquarie Hospital
  • Nepean Hospital
  • Royal Prince Alfred Hospital
  • St George Hospital
  • St Vincent's Hospital (Darlinghurst)
  • The Children's Hospital - Westmead
  • Westmead Hospital

Queensland

  • Gold Coast University Hospital
  • Princess Alexandra Hospital
  • Queensland Children's Hospital
  • Sunshine Coast University Hospital
  • The Prince Charles Hospital
  • The Wesley Hospital

South Australia

  • Flinders Medical Centre
  • The Royal Adelaide Hospital
  • Women's and Children's Hospital

Tasmania

  • Royal Hobart Hospital

Victoria

  • Austin Health
  • St Vincent's Hospital (Melbourne)
  • The Alfred
  • The Royal Children's Hospital

Western Australia

  • Fiona Stanley Hospital

Other 

  • Auckland City Hospital
  • Starship Hospital
  • Christchurch Hospital

 

Condition
Pulmonary Hypertension
Name
Pulmonary Hypertension Society of Australia and New Zealand Registry
Lead organisation
Pulmonary Hypertension Society of Australia and New Zealand
Ethics approval reference
St Vincent's Hospital Human Research Ethics Committee 2019/ETH03421
Preferred published date
Immediately
Back to top