Privacy Impact Assessment Register

The PaRIS survey is an Organisation for Economic Co-operation and Development (OECD) initiative to promote people-centred health care, and its aim is to strengthen the measurement of patient-reported outcomes and experiences.

The survey is focused on patients aged over 45 with one or more chronic condition in primary and ambulatory care. It includes both patient-reported outcome measures (PROMS) and patient reported experience measures (PREMS). Examples of PROMS are ratings of peoples’ pain, physical functioning, and psychological well-being. Examples of PREMS are peoples’ experiences with healthcare, such as experienced waiting times and communication with healthcare providers. On top of the PROMS and PREMS, some background characteristics such as age, sex and the type of conditions will be collected to be used in data analysis.

As well as a patient questionnaire, there will be a provider questionnaire to collect some practice and provider characteristics.

The PaRIS Survey is being conducted by the Australian Commission on Safety and Quality in Health Care (the Commission), on behalf of the on Australian Government Department of Health and Aged Care. The Commission has engaged ORIMA Research to assist with implementation of the survey Australia-wide.

The PaRIS project has also been reviewed and approved by a Human Research Ethics Committee (HREC reference number - 0012023).

The Privacy Impact Assessment for the project considers how personal information is collected, managed, and protected; an assessment of compliance with the Australian Privacy Principles; and recommendations to mitigate any privacy impacts.