PROM Recommendations

A literature review is conducted to identify existing PROMs that are collected from people with a specified condition.

An environmental scan is conducted to identify existing PROM collection practices, programs, and standards across Australia and internationally. This scan is supplemented by informant interviews conducted with experts in collecting and using PROMs for the specified condition.

Based on the findings of the literature review and environmental scan, candidate PROMs are identified and assessed on its psychometric properties such as reliability and construct validity.

A panel consisting of clinicians and lived experience consumers considers findings from the literature review, environmental scan, and psychometric assessment to build consensus on PROMs to collect for the specified condition. The panel assess candidate PROMs against criteria such as interpretability and clinical relevance. The panel also considers alignment with best practices in existing programs in Australia and internationally. The panel provides advice on time points for administration of PROMs and how to meet diverse needs.

The Commission publishes recommendations on patient reported outcomes that are important to patients with the specific condition, and what PROMs to use to measure those outcomes.

Recommendations are based on current evidence and practices and input from clinicians with extensive experience using PROMs in their clinical practice. It is expected that new evidence and validation studies will emerge over time that either support recommended PROMs or support newer PROMs that demonstrate superior psychometric properties. The Commission will review and refine its recommendations as more high-quality evidence and validation studies are published, and PROM collection practices evolve.