Karen Hamilton, Healthcare Improvement Unit, Clinical Excellence Queensland, QPPAMRC@health.qld.gov.au
The Queensland Perioperative and Periprocedural Anaesthetic Mortality Review Committee (QPPAMRC) is a gazetted Quality Assurance Committee pursuant to Part 6, Division 1 of the Hospital and Health Boards Act 2011.
The Committee reports and provides advice to the Director-General, Queensland Department of Health via an annual report and on a needs basis.
The QPPAMRC was established to:
- Collect and analyse clinical information regarding perioperative and periprocedural anaesthetic mortality in Queensland to identify statewide trends
- Makes recommendations to the Queensland Minister for Health on standards and quality indicators of perioperative and periprocedural anaesthetic clinical care to enable health care providers to review and improve safety and quality of care in Queensland health services
- Assists with the adoption of such standards in both public and private sectors.
The Committee functions collaboratively with the Statewide Anaesthesia and Perioperative Care Clinical Network (SWAPNET), other relevant clinical networks and the Private Hospitals Association of Queensland.
- Annual report provided to the Director-General, Queensland Health (QAC requirement)
- Mortality Review Report developed for every 1000 cases as an opportunity for learning for anaesthetists across Queensland
- Mortality Review Report provided to the Statewide Anaesthesia and Perioperative Care Clinical Network (SWAPNET) for consideration / action as required
- Shared with clinicians
- Shared with medical colleges
Nil
Nil
Queensland
- Atherton Hospital
- Ayr Hospital
- Beaudesert Hospital
- Biloela Hospital
- Bundaberg Hospital
- Caboolture Hospital
- Cairns base Hospital
- Caloundra Hospital
- Charleville Hospital
- Chinchilla Hospital
- Cooktown Hospital
- Dalby Hospital Health Service
- Emerald Hospital
- Gladstone Hospital
- Gold Coast Hospital
- Goondiwindi Hospital
- Gympie Hospital
- Hervey Bay Hospital
- Ingham Hospital
- Innisfail Hospital
- Ipswich Hospital
- Kingaroy Hospital & Community Health Centre
- Logan Hospital
- Longreach Hospital
- Mackay base Hospital
- Mareeba Hospital
- Maryborough Hospital
- Mount Isa Base Hospital
- Nambour General Hospital
- Princess Alexandra Hospital
- Proserpine Hospital
- Queen Elizabeth II Jubilee Hospital
- Redcliffe Hospital
- Redland Hospital
- Rockhampton Base Hospital
- Roma Hospital
- Royal Brisbane & Womens Hospital
- St George Hospital
- Stanthorpe Hospital
- The Prince Charles Hospital
- The Townsville Hospital
- Theodore Hospital
- Thursday Island Hospital
- Toowoomba Hospital
- Warwick Hospital
The QPPAMRC functions under the authority of the Hospital and Health Boards Act 2011, Part 6, Safety and quality, Division 1 Quality assurance committees, the purpose of which as defined in Section 81, is to improve the safety and quality of health services by providing protections for quality assurance committees established under the division.
Anne Darton, NSW Health - Agency for Clinical Innovation, anne.darton@health.nsw.gov.au
The SBIS Registry has been established to provide a comprehensive registry of severe burn injuries treated at the three NSW Burns Units: the Children’s Hospital at Westmead, Royal North Shore Hospital and Concord Repatriation General Hospital. Burns patients represent a well defined and distinct subgroup of trauma patients in NSW. Extensive burns are associated with substantial treatment and rehabilitation costs, and many result in permanent disability, highlighting the need to monitor the incidence, management and outcomes of burn injury.
The data collected enables the registry to meet its aims of monitoring, surveillance and clinical evaluation and is critical for:
- Improving service planning for burns patients in NSW
- Informing the development of injury prevention campaigns and strategies
- Developing best practice clinical guidelines and initiatives
- Developing key clinical indicators at a state level
- Monitoring quality and types of care provided to burns patients
- Allowing the generation of reports used in monthly, quarterly and annual audits for the burns service.
- Shared with clinicians
- Shared with consumers
- Shared with hospital executive
Nil
Nil
- Concord Repatriation Hospital
- Royal North Shore Hospital
- The Children’s Hospital at Westmead
Karen Hamilton, Healthcare Improvement Unit, Clinical Excellence Queensland, Karen.Hamilton@health.qld.gov.au
ABS – Obstetrics is a web-accessible data collection tool designed to capture anaesthetic obstetric clinical information within the labour (maternity) and perioperative environments.
The ABS – Obstetrics is clinician driven and has been developed to assist hospitals and health services to achieve clinical practice improvement and provide safer and more satisfying experiences for mothers and babies by:
- Monitoring and measuring performance against agreed standards
- Identifying process deficiencies
- Reducing clinical risk and embed evidence-based practice
- Improving the quality of care
Agreed statewide indicators (based on the Royal College of Anaesthetists, audit recipe of continuous improvement) include:
Epidural:
- % epidural attended within 30 minutes
- % epidural requests attended within 60 minutes
- % epidural resited
- % epidural who sustain an accidental dural puncture
- % epidural that are deemed unsuccessful (composite endpoint)
- % satisfied with epidural
- % epidural providing adequate pain relief within 45 minutes of the epidural being inserted
- % PDPH requiring EBP
Caesarean:
- % category 1 caesarean sections performed within 30 minutes from booking to delivery time
- % category 2 caesarean sections performed within 60 minutes from booking to delivery time
- % category 1 caesarean performed under regional anaesthesia
- % of all emergency caesarean sections performed under regional
- % of all elective caesarean performed under regional
- % of all category 1 caesarean performed under regional that complain of pain
- % of all emergency caesarean performed under regional that complain of pain
- % of all elective caesarean performed under regional that complain of pain
- % category 1 converted from regional to GA
- % emergency caesarean sections converted from regional to GA
- % of elective caesarean sections converted from regional to GA
- % women satisfied with post-op pain relief
- Reported in an annual report
- Shared with clinicians
- Shared with hospital executive
- The Anaesthetic Obstetrics Registry Steering Committee reports through the Statewide Anaesthesia and Perioperative Care Clinical Network (SWAPNet)
Nil
Nil
Queensland
- Atherton Hospital
- Ayr Hospital
- Beaudesert Hospital
- Biloela Hospital
- Bundaberg Hospital
- Caboolture Hospital
- Cairns Base Hospital
- Charleville Hospital
- Chinchilla Hospital
- Cooktown Hospital
- Dalby Hospital Health Service
- Gladstone Hospital
- Gold Coast Hospital
- Goodiwindi Hospital
- Gympie Hospital
- Hervey Bay Hospital
- Ingham Hospital
- Innisfail Hospital
- Ipswich Hospital
- Kingaroy Hospital & Community Health Centre
- Logan Hospital
- Longreach Hospital
- Mackay Base Hospital
- Mareeba Hospital
- Mount Isa Base Hospital
- Nambour General Hospital
- Proserpine Hospital
- Redcliffe Hospital
- Redland Hospital
- Rockhampton Base Hospital
- Roma Hospital
- Royal Brisbane & Womens Hospital
- Royal Brisbane Hospital
- St George Hospital (QLD)
- Stanthorpe Hospital
- The Townsville Hospital
- Thursday Island Hospital
- Toowoomba Hospital
- Warwick Hospital
Transfusion Research Unit, Monash University, sphpm.transfusion@monash.edu
The Neonatal Alloimmune Thrombocytopenia (NAIT) Registry is a register of women who develop or have a history of NAIT, and their children, both before and after birth. The registry captures data on the presentation, treatment and clinical outcomes of this rare condition.
Individual NAIT patients require considerable support, with high diagnostic needs and high transfusion requirements, often with special products. The NAIT registry was established to address evidence gaps in the treatment, management and outcome of Australian NAIT cases, and to support hypothesis-driven research in this area.
Patients who have been diagnosed with (and/or managed as suspected) NAIT are eligible for inclusion in the registry. They may be identified by treating clinicians from participating hospitals or registry staff, or based on laboratory data provided by the Australian Red Cross Blood Service. Patients may also identify themselves to the registry. Patients are not excluded unless they choose to ‘opt-off’ the registry, as explained in the study brochure and opt-off information.
Routinely collected information in the diagnosis and treatment of NAIT is entered into a web-based data collection form. Clinical data collection is undertaken by clinicians and some laboratory data by the Blood Service. Data management and analysis is undertaken by the Monash University Department of Epidemiology and Preventive Medicine.
- Shared with clinicians
- Periodic newsletters
- Presentations at local and national scientific meetings
- Publications in the peer-reviewed literature
Nil
Nil
Australian Capital Territory
- Canberra Hospital
Victoria
- Barwon Health
- Epworth HealthCare
- Mercy Hospital for Women
- Monash Medical Centre
- Royal Children's Hospital
- Royal Women's Hospital
- Sunshine Hospital (Western Health)
New South Wales
- Children's Hospital Westmead
- John Hunter Hospital
- Liverpool Hospital
- Nepean Hospital
- Royal Hospital for Women
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- St George's Public Hospital
- Sydney Adventist Hospital
- Westmead Hospital
- Wollongong Hospital
Queensland
- Royal Brisbane and Women’s Hospital
- Royal Children's Hospital Brisbane (Herston)
- Mater Mother's Hospital
- Townsville Hospital
Northern Territory
- Royal Darwin Hospital
Western Australia
- Fiona Stanley Hospital
- King Edward Memorial Hospital
- Royal Perth Hospital
South Australia
- Flinders Medical Centre
- Women's and Children's Hospital
Tasmania
- Royal Hobart Hospital
Transfusion Research Unit, Monash University, sphpm.transfusion@monash.edu
The aims of the MDS Registry are to:
- Monitor access to care
- Benchmark outcomes nationally and internationally
- Explore variation in practice, process and outcomes
- Monitor trends in incidence and survival
- Explore the factors that influence outcomes including survival and quality of life
- Be a resource for clinical trials and further research – MDS Registry data on patterns of treatment and variation in patient outcomes allows evaluation of advances in therapy outside the setting of clinical trials, and will enable provision of the best possible care to people with MDS
- Feedback to contributing clinicians
Nil
Nil
- Cabrini Hospital Melbourne
- Monash Health
- Austin Hospital
- Royal Adelaide Hospital
Krupa Krishnaprasad and Nik Zeps, Monash University, pcor-anz@monash.edu
PCOR-ANZ (Prostate Cancer Outcomes Registry - Australia and New Zealand) is a large-scale prostate cancer registry that collects information on the care provided and the outcomes for men diagnosed with prostate cancer in Australia and New Zealand. Clinical and patient-reported data are collected within Australian jurisdictions and in New Zealand.
Our purpose is to monitor; benchmark and report on prostate cancer treatment and care; provide risk adjusted, evidence based data to clinicians, hospitals and decision makers on prostate cancer management. Additionally, the registry aims to foster improved quality of treatment and care for men diagnosed with prostate cancer and research leading to improvement in care and survival and enabling comparisons across countries.
- Reported in an annual report
- Shared with clinicians
- Shared with hospital executive
Expanded Prostate cancer Index Composite Short Form (EPIC-26) - Quality of Life, EORTC QLQ –PR25 and questions from the utilisation of sexual medications/devices (Libido questions only) questionnaire
Nil
https://prostatecancerregistry.org/whos-involved/
Hospitals are listed below. Please click on the link above for a list of clinicians involved.
Australian Capital Territory
- Barton Private Hospital
- Calvary Bruce Private Hospital
- Calvary Public Hospital Bruce
- Canberra Private Hospital
- Icon Cancer Centre Canberra
- National Capital Private Hospital
- Calvary John James Hospital
- Canberra Hospital
Victoria
- Alfred Hospital (Alfred Health)
- Alfred Radiation Oncology (Alfred Health)
- Angliss Hospital (Eastern Health)
- Austin Hospital (Austin Health)
- Bairnsdale Regional Health Service
- Ballarat Health Service
- Bass Coast Health
- Beleura Private Hospital (Ramsay Health Care)
- Bendigo Health
- Box Hill Hospital (Eastern Health)
- Broadmeadows Hospital (Northern Health)
- Cabrini Hospital Brighton
- Cabrini Hospital Malvern
- Casey Hospital (Monash Health)
- Caulfield Hospital (Alfred Health)
- Central Gippsland Health Service
- Colac Area Health
- Craigieburn Centre (Northern Health)
- Dandenong Hospital (Monash Health)
- Echuca Regional Health
- Epworth Eastern
- Epworth Freemasons
- Epworth Geelong
- Epworth Hawthorn
- Epworth Richmond
- Footscray Hospital (Western Health)
- Frankston Hospital (Peninsula Health)
- GenesisCare Albury Wodonga
- GenesisCare Berwick
- GenesisCare Cabrini
- GenesisCare Epping
- GenesisCare Footscray
- GenesisCare Frankston
- GenesisCare Ringwood
- GenesisCare St Vincent's
- Gippsland Radiation Oncology
- Gippsland Southern Health Service
- Goulburn Valley Health
- Healesville Hospital (Eastern Health)
- Heidelberg Repatriation Hospital (Austin Health)
- Kerang and District Health
- Kyabram District Health Services
- Kyneton District Health Service
- Latrobe Regional Hospital
- Linarce Private Hospital (Ramsay Health Care)
- Maroondah Hospital (Eastern Health)
- Maryvale Private Hospital
- Masada Private Hospital
- Mildura Base Hospital
- Mildura Private Hospital
- Mitcham Private Hospital (Ramsay Health Care)
- Monash Medical Centre Clayton (Monash Health)
- Moorabbin Hospital (Monash Health)
- Mulgrave Private Hospital
- Northern Hospital Epping (Northern Health)
- Peninsula Private Hospital (Ramsay Health Care)
- Peter MacCallum Cancer Centre - Bendigo
- Peter MacCallum Cancer Centre - Box Hill
- Peter MacCallum Cancer Centre - Moorabbin
- Peter MacCallum Cancer Centre - Parkville
- Peter MacCallum Cancer Centre - Sunshine
- Portland District Health
- Rochester and Elmore District Health Service
- Rosebud Hospital (Peninsula Health)
- Royal Melbourne Hospital (Melbourne Health)
- Sandringham Hospital (Alfred Health)
- Shepparton Private Hospital (Ramsay Health Care)
- South Gippsland Hospital
- South West Healthcare (Warrnambool Base Hospital)
- St John of God - Ballarat
- St John of God - Bendigo
- St John of God - Geelong
- St John of God - Warrnambool
- St Vincent's Hospital Melbourne
- Sunshine Hospital (Western Health)
- Swan Hill District Hospital
- The Avenue Private Hospital (Ramsay Health Care)
- The Bays Private Hospital
- University Hospital Geelong
- Wangaratta Private Hospital (Ramsay Health Care)
- Wantirna Health (Eastern Health)
- Warringal Private Hospital (Ramsay Health Care)
- Waverley Private Hospital (Ramsay Health Care)
- West Gippsland Healthcare Group
- Western District Health Service
- Williamstown Hospital (Western Health)
- Yarra Ranges Health (Eastern Health)
New South Wales
- Armidale Rural Referral Hospital
- Bankstown-Lidcombe Hospital
- Bathurst Base Hospital
- Belmont Hospital
- Blacktown Hospital
- Calvary Mater Hospital
- Campbelltown Hospital
- Chris O'Brien Lifehouse
- Cobar District Hospital
- Coffs Harbour Health Campus
- Coonabarabran District Hospital
- Dubbo Base Hospital
- Garvan Institute (St Vincent's Clinic)
- Gosford Hospital
- Grafton Base Hospital
- Griffith Hospital
- John Hunter Hospital (Royal Newcastle Centre)
- Lismore Base Hospital
- Liverpool Hospital
- Macquarie University Hospital
- Maitland Hospital
- Manning Rural Referral Hospital
- Mudgee District Hospital
- Nepean Hospital
- Orange Health Service
- Port Macquarie Base Hospital
- Prince of Wales Hospital
- Riverina Cancer Care Centre
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- Shoalhaven District Memorial Hospital
- St George Hospital
- St Vincent’s Hospital Sydney
- St Vincent’s Private Hospital
- Sydney Adventist Hospital
- Tamworth Rural Referral Hospital
- The St Vincent's Prostate Cancer Centre (St Vincent's Clinic)
- Wagga Wagga Base Hospital
- Walgett Health Service
- Westmead Hospital
- Wollongong Hospital
- Wyong Hospital
- Young Hospital
Queensland
- Bayside Urology - Private
- Bowes Urology
- Brisbane Private Hospital
- Brisbane Prostate Clinic
- Brisbane Urology Clinic
- Buderim Private Hospital
- Cairns Hospital
- Coastal Urology Clinic
- Dr Kenneth P'ng Private Practice
- Dr Kenny Rao Urology
- East Coast Urology
- Genesis Care
- Gold Coast Private Hospital
- Gold Coast University Hospital
- Gold Coast Urology
- Greenslopes Private Hospital
- Greenslopes Urology Clinic
- Ipswich Hospital
- Ipswich Urology
- Jamie Reynolds Urology
- Jo Schoeman Urology
- Mackay Base Hospital
- Mackay Urology
- Mater Hospital Brisbane
- Mater Hospital Mackay
- Mater Private Hospital Townsville
- Northern Urology
- Northern Urology Clinic
- Oceanside Urology
- Patrick Dunne Urology
- Pioneer Urology
- Princess Alexandra Hospital
- QE II Jubilee Hospital
- Queensland Prostate Clinic
- Redcliffe Hospital
- Rockhampton Hospital
- Royal Brisbane and Women’s Hospital
- St Andrew's Hospital Toowoomba
- St Vincent's Private Hospital Northside
- Sunshine Coast Urology Clinic
- The Prostate Clinic (Gold Coast)
- Toowoomba Base Hospital
- Toowoomba Urology
- Townsville Hospital
- Townsville Urology
- UroBriz
- UroMed
- Watson Urology
- Wesley Hospital
- Wesley Urology Clinic
Northern Territory
- Alice Springs Hospital
- Darwin Private Hospital
- Royal Darwin Hospital
South Australia
- Ashford Hospital
- Calvary Central Districts Hospital
- Calvary North Adelaide Hospital
- Flinders Medical Centre
- Flinders Private Hospital
- Genesis Care - Calvary Central Districts Hospital
- Genesis Care - Flinders Private Hospital
- Genesis Care - St Andrew's Hospital
- Genesis Care - Tennyson Centre
- Lyell McEwin Hospital
- Modbury Hospital
- Naracoorte Hospital
- Noarlunga Hospital
- Royal Adelaide Hospital
- St Andrew's Hospital
- The Queen Elizabeth Hospital
- Western Hospital
Tasmania
- Calvary Hospital – Lenah Valley Campus, Hobart
- Calvary Hospital – St John’s Campus, Hobart
- Calvary Hospital – St Luke’s Campus, Launceston
- Calvary Hospital – St Vincent’s Campus, Launceston
- Hobart Private Hospital
- Launceston General Hospital
- North Tas Urology - Launceston
- Royal Hobart Hospital
- Tamar Urology
New Zealand
- Andy Malcolm Urology
- Auckland District Health Board
- Canterbury District Health Board
- Capital and Coast District Health Board
- Counties Manukau District Health Board
- Hawke Urology
- Hawke's Bay District Health Board
- Hutt Valley District Health Board
- Lakes District Health Board
- Merrilees Dawson Ltd
- MidCentral District Health Board
- Mischel Neill Urology
- Nelson Marlborough District Health Board
- North Shore Urology
- Northland District Health Board
- OneSixOne
- South Canterbury District Health Board
- Southern District Health Board
- Southern Urology
- Taranaki District Health Board
- UA Central Otago
- Urology Associates
- Urology BOP
- Urology Care Wellington
- Waikato District Health Board
- Wairarapa District Health Board
- Waitemata District Health Board
- West Coast District Health Board
- Whanganui District Health Board
Professor Belinda Gabbe, Monash University, belinda.gabbe@monash.edu
The 1999 Review of Trauma and Emergency Services (ROTES) report recognised that an effective trauma system requires formal monitoring and feedback processes. It recommended a state trauma registry be established to ascertain the effectiveness of the system and to provide ongoing monitoring of major trauma patients.
The Victorian State Trauma System (VSTS) was introduced to improve the delivery of trauma care in this state. The Victorian State Trauma Registry (VSTR) has enabled monitoring and analysis of the VSTS to critically review trauma care across the state with the aim of reducing preventable deaths and permanent disability from major trauma.
Feedback to health services through Department of Health (Victoria) Case Review Group and State Trauma Advisory Committee.
The registry monitors collects PROMs at six, 12 and 24 months following injury.
- Function – Extended Glasgow Outcome Scale (GOS-E)
- Health-related quality of life – EQ-5D-5L
- Disability - WHO Disability Assessment Schedule
- Pain – Numerical Rating Scale
- Return to work and work disability
Nil
https://www.monash.edu/__data/assets/pdf_file/0011/1402121/VSTORM_Contributing-Health-Services.pdf
Victoria
- Albury Wodonga Health: Albury Base Hospital
- Albury Wodonga Health (Wodonga)
- Alfred Health: The Alfred
- Alexandra District Hospital
- Alpine Health (Bright)
- Alpine Health (Mt Beauty)
- Alpine Health (Myrtleford)
- Austin Health: Austin Hospital
- Bairnsdale Regional Health Service
- Ballan District Health and Care
- Ballarat Health Services: Ballarat Base Hospital
- Balmoral Bush Nursing Centre
- Barwon Health: The Geelong Hospital
- Bass Coast Regional Health (Wonthaggi)
- Bayside Health: Sandringham and District Memorial Hospital
- Beaufort and Skipton Health Service (Beaufort)
- Beaufort and Skipton Health Service (Skipton)
- Beechworth Health Service
- Benalla and District Memorial Hospital
- Bendigo Health Care Group: Bendigo Hospital
- Boort District Health
- Buchan Bush Nursing Centre
- Cann Valley Bush Nursing Centre
- Casterton Memorial Hospital
- Castlemaine Health (Mt Alexander)
- Central Gippsland Health Service (Sale)
- Cobden District Health Service
- Cobram District Hospital
- Cohuna District Hospital
- Colac Area Health (Birregurra Community Health Centre)
- Colac Area Health (Colac)
- Dargo Bush Nursing Centre Inc.
- Dartmoor and District Bush Nursing Centre Inc.
- Dingee Bush Nursing Centre Inc.
- Djerriwarrh Health Services (Bacchus Marsh)
- Dunmunkle Health Services (Rupanyup)
- East Grampians Health Service (Ararat)
- East Wimmera Health Service (Birchip)
- East Wimmera Health Service (Charlton)
- East Wimmera Health Service (Donald)
- East Wimmera Health Service (St Arnaud)
- East Wimmera Health Service (Wycheproof)
- Eastern Health: Box Hill Hospital
- Eastern Health: Maroondah Hospital
- Eastern Health: The Angliss Health Services
- Echuca Regional Health
- Edenhope and District Memorial Hospital
- Elmhurst Bush Nursing Centre
- Ensay Bush Nursing Service Inc
- Epworth Hospital
- Euroa Health Inc.
- Falls Creek Medical Centre
- Gelantipy District Bush Nursing Centre
- Gippsland Southern Health Service (Korumburra)
- Gippsland Southern Health Service (Leongatha)
- Goulburn Valley Health (Shepparton)
- Heathcote Health (McIvor)
- Hepburn Health Service (Creswick)
- Hepburn Health Service (Daylesford)
- Hesse Rural Health Service (Beeac)
- Hesse Rural Health Service (Rokewood)
- Hesse Rural Health Service (Winchelsea)
- Heyfield Hospital Inc
- Heywood Rural Health
- Inglewood and Districts Health Service
- Kerang and District Hospital
- Kilmore and District Hospital
- Knox Private Hospital
- Kyabram and District Health Service
- Kyneton District Health Service
- Lake Bolac Bush Nursing Centre
- Latrobe Regional Hospital
- Lockington and District Bush Nursing Centre Inc.
- Lorne Community Hospital
- Maldon Hospital
- Mallee Track Health and Community Service
- Maryborough District Health Service
- Mansfield District Hospital
- Mercy Public Hospitals Inc: The Mercy Hospital Werribee
- Mildura Base Hospital
- Moyne Health Services (Port Fairy)
- Mt Buller Medical Centre
- Mt Hotham Medical Centre
- Nagambie Medical Centre
- Nathalia District Hospital
- Neerim District Soldiers Memorial Hospital
- Northeast Health Wangaratta
- Northern Health: The Northern Hospital
- Numurkah District Health Service
- Omeo District Hospital
- Orbost Regional Health
- Otway Health and Community Service (Apollo Bay)
- Peninsula Health: Frankston Hospital
- Peninsula Health: Rosebud Hospital
- Portland District Health
- Robinvale District Hospital and Health Service
- Rochester and Elmore District Health Service
- Rural Northwest Health (Hopetoun)
- Rural Northwest Health (Warracknabeal)
- Seymour District Memorial Hospital
- Sisters of Charity Health Service Melbourne: St Vincent’s Hospital
- St John of God Hospital Ballarat
- Stawell Regional Health
- South Gippsland Hospital (Foster)
- South West Health Care (Camperdown Campus)
- South West Health Care (Lismore)
- South West Health Care (Warrnambool Campus)
- Southern Health: Monash Medical Centre, Casey Campus
- Southern Health: Monash Medical Centre, Clayton Campus
- Southern Health: Monash Medical Centre, Moorabbin Campus
- Southern Health: Dandenong Hospital
- Swan Hill District Health
- Swifts Creek Bush Nursing Centre Inc.
- Tallangatta Health Service
- Terang and Mortlake Health Service (Mortlake)
- The Royal Children’s Hospital
- The Royal Melbourne Hospital
- Timboon and District Healthcare Service
- Upper Murray Health and Community Services (Corryong)
- Violet Town Bush Nursing Centre
- Walwa Bush Nursing Centre
- West Gippsland Healthcare Group (Warragul)
- West Wimmera Health Service (Jeparit)
- West Wimmera Health Service (Kaniva)
- West Wimmera Health Service (Nhill)
- West Wimmera Health Service (Rainbow)
- Western District Health Service (Hamilton)
- Western District Health Service (Merino)
- Western District Health Service (Penshurst)
- Western Health: Sunshine Hospital
- Western Health: Williamstown Hospital
- Western Health: Western Hospital
- Wimmera Health Care Group (Dimboola)
- Wimmera Health Care Group: Wimmera Base Hospital
- Woomelang Bush Nursing Centre
- Yarram and District Health Service
- Yarrawonga District Health Service
- Yea and District Memorial Hospital
Nicole Packham, NSW Ambulance, nicole.packham@health.nsw.gov.au
The Registry includes all patients with out-of-hospital cardiac arrest (OHCA) who were attended by NSW Ambulance clinicians since 1 January 2017. The data collected from clinical and operational records describe the pre-hospital links in the cardiac arrest 'chain of survival' (the series of steps that gives patients the best chance of surviving an OHCA). Record linkage with the NSW Registry of Births, Deaths and Marriages provides data on survival and interviews with survivors at 12 examine quality of life.
The key data fields are based on the Utstein template, which was developed to promote uniform presentation of OHCA survival data across different regions of the world. The outcomes measured are survival to hospital; survival at 30 days and quality of life at 12 months post arrest.
Key aims include: to improve service-level performance and patient safety by enhancing the quality, accessibility and timing of the information that is available to clinical decision-makers; to support research that may inform OHCA guidelines; to measure the long-term impact of OHCA on patients’ quality-of-life and functional capacity and to participate in the Australian Resuscitation Outcomes Consortium (Aus-ROC). Au-ROC is an epistry (epidemiological registry) that combines and compares data from OHCA registries in Australia and New Zealand to increase the understanding of the intra-regional, ambulance service and treatment factors that are associated with improved OHCA survival and outcomes.
- Reported in annual report
- Shared with clinicians
- NSW Productivity Commission's Report on Government Services
Quality of life measures via telephone interviews at 12 months
Nil
Not applicable
Nil
Kathy Hill, khill@aoanjrr.org.au
The AOANJRR is a national Quality Improvement Program to audit the outcome of joint replacement in Australia. It is an initiative of the Australian Orthopaedic Association (AOA) and is permanently funded by the Commonwealth Government. It was established in 1999 and is listed as a Declared Quality Assurance Activity under section 124X of the Health Insurance Act 1973 (QAA 3/2017). The specific objectives are:
- Establish demographic data related to joint replacement surgery
- Determine regional variation in practice of joint surgery
- Identify the demographic and diagnostic characteristics of patients that effect outcomes
- Analyses the effectiveness of difference prostheses and treatment to specific diagnoses
- Evaluate the effectiveness of the large variety of prostheses currently on the market by analysing their survival rates
- Educate orthopaedic surgeons on the most effective prostheses and techniques to improve patient outcomes
- Provide surgeons with an auditing facility, information that can instigate tracking of patients if necessary.
- Reported in an annual report
- Reported in other public reports
- Shared with clinicians
- Shared with consumers
- Shared with hospital executive
- Feedback to contributing clinicians
- Reported to State/Territory health departments
Standard PROMs collected by the AOANJRR pre-operative and 6 months post-operative
- EQ5D5L
- HOOS/KOOS (mid level)
- Oxford Hip, Knee, Shoulder
Additional PROMs for Registry Nested Clinical Trials
- Forgotten Joint Score
- HOOS Junior
Nil
Australian Capital Territory
- Calvary John James Memorial Hospital
- Calvary Public Hospital
- Canberra Private Hospital
- Calvary Bruce Private Hospital
- The Canberra Hospital
- The National Capital Private
Victoria
- Austin Health
- Bairnsdale Regional Health Service
- Ballarat Day Procedure Centre
- Ballarat Health Service
- Bass Coast Regional Health
- Beleura Private Hospital
- Bellbird Private Hospital
- Bendigo Health Care Group
- Box Hill Hospital
- Broadmeadows Hospital
- Cabrini Private Hospital, Brighton
- Cohuna District Hospital
- Colac Area Health
- Dandenong Hospital
- Djerriwarrh Health Services Bacchus Marsh Campus
- East Grampians Health Service
- Echuca Regional Health
- Epping Private Hospital
- Epworth Eastern Hospital
- Epworth Freemasons
- Epworth Geelong
- Epworth Richmond
- Essendon Private Hospital
- Frankston Private Hospital
- Footscray Hospital
- Frankston Hospital
- Glenferrie Private Hospital
- Goulburn Valley Health
- Hamilton Base Hospital
- Holmesglen Private Hospital
- John Fawkner Hospital
- Kyabram District Health Service
- Knox Private Hospital
- Latrobe Regional Hospital
- Linacre Private Hospital
- Maroondah Hospital
- Maryvale Private Hospital
- Masada Private Hospital
- Melbourne Private Hospital
- Mildura Base Hospital
- Mildura Private Hospital
- Mitcham Private Hospital
- Monash Medical Centre Clayton Campus
- Moorabbin Hospital
- Mulgrave Private Hospital
- Northeast Health Wangaratta
- Northpark Private Hospital
- Peninsula Private Hospital
- Portland Hospital
- Ringwood Private Hospital
- Sandringham Hospital
- Seymour District Memorial Hospital
- Shepparton Private Hospital
- South West Health Care Warrnambool Campus
- St John of God Ballarat Hospital
- St John of God Bendigo Hospital
- St John of God Berwick Hospital
- St John of God Geelong Hospital
- St John of God Warrnambool Hospital
- St Vincent’s Private East Melbourne
- St Vincent’s Private Fitzroy
- St Vincent’s Private Kew
- St Vincents Public Hospital
- St Vincent's Private Werribee
- Stawell Regional Health
- Sunshine Hospital
- Swan Hill District Health
- The Alfred
- The Avenue Hospital
- The Bays Hospital
- The Melbourne Eastern Private Hospital
- The Northern Hospital
- The Royal Children's Hospital
- The Royal Melbourne Hospital
- University Hospital Geelong Barwon Health
- Vermont Private Hospital
- Wangaratta Private Hospital
- Warringal Private Hospital
- Waverley Private Hospital
- Werribee Mercy Hospital
- West Gippsland Healthcare Group
- West Wimmera Health Service
- Western Private Hospital
- Williamstown Hospital
- Wimmera Health Care Group
New South Wales
- Albury Base Hospital
- Albury Wodonga Private Hospital
- Armidale Hospital
- Armidale Private Hospital
- Auburn Health Service
- Bankstown/Lidcombe Hospital
- Baringa Private Hospital
- Bathurst Base Hospital
- Bathurst Private Hospital
- Belmont Hospital
- Blacktown Hospital
- Bowral and District Hospital
- Brisbane Waters Private Hospital
- Bowral and District Hospital
- Broken Hill Health Service
- Calvary Health Care Riverina
- Campbelltown Hospital
- Campbelltown Private Hospital
- Canterbury Hospital
- Chris O'Brien Lifehouse
- Coffs Harbour Health Campus
- Concord Repatriation Hospital
- Dalcross Adventist Hospital
- Delmar Private Hospital
- Dubbo Base Hospital
- Dubbo Private Hospital
- Dudley Private Hospital
- East Sydney Private Hospital
- Fairfield Hospital
- Forster Private Hospital
- Gosford Hospital
- Gosford Private Hospital
- Goulburn Base Hospital
- Grafton Base Hospital
- Hawkesbury District Health Service
- Holroyd Private Hospital
- Hornsby Ku-Ring-Gai Hospital
- Hunter Valley Private Hospital
- Hurstville Private Hospital
- Insight Clinic Private Hospital
- Inst of Rheum & Orthopaedic Surgery
- John Hunter Hospital
- Kareena Private Hospital
- Kogarah Private Hospital
- Lake Macquarie Private Hospital
- Lakeview Private Hospital
- Lingard Private Hospital
- Lismore Base Hospital
- Liverpool Health Service
- Macquarie University Hospital
- Maitland Hospital
- Maitland Private Hospital
- Manning Rural Referral Hospital
- Mayo Private Hospital
- Mount Druitt Hospital
- Murwillumbah District Hospital
- Nepean Hospital
- Nepean Private Hospital
- Newcastle Private Hospital
- North Shore Private Hospital
- Northern Beaches Hospital
- Norwest Private Hospital
- Nowra Private Hospital
- Orange Health Service
- Port Macquarie Base Hospital
- Port Macquarie Private Hospital
- Royal Newcastle Centre
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- Ryde Hospital
- Shellharbour Private Hospital
- Shoalhaven District Memorial Hospital
- South East Regional Hospital
- Southern Highlands Hospital
- St George Hospital
- St George Private Hospital
- St Lukes Care
- St Vincent’s Private Community Hospital Griffith
- St Vincents Private Hospital Darlinghurst
- St Vincents Private Hospital Lismore
- St Vincents Public Hospital
- Strathfield Private Hospital
- Sutherland Hospital
- Sydney Adventist Private Hospital
- Sydney Private Hospital
- Sydney South West Private Hospital
- Tamara Private Hospital
- Tamworth Base Hospital
- The Children's Hospital Westmead
- The Mater Hospital
- The Prince of Wales Hospital
- The Prince of Wales Private Hospital
- Toronto Private Hospital
- Tuggerah Lakes Private Hospital
- Tweed Hospital
- Wagga Wagga Base Hospital
- Waratah Private Hospital
- Warners Bay Private Hospital
- Westmead Private Hospital
- Westmead Public Hospital
- Wollongong Hospital
- Wollongong Private Hospital
- Wyong Hospital
Queensland
- Brisbane Private Hospital
- Bundaberg Base Hospital
- Buderim Private Hospital
- Caboolture Private Hospital
- Cairns Base Hospital
- Cairns Private Hospital
- Friendly Societys Hospital Bundaberg
- Gold Coast Hospital, Robina Campus
- Gold Coast Private Hospital
- Gold Coast University Hospital
- Greenslopes Private Hospital
- Hervey Bay Hospital
- Hervey Bay Surgical Centre
- Hillcrest Private Hospital, Rockhampton
- Ipswich Hospital
- John Flynn Hospital, Tugun
- Logan Hospital
- Mackay Base Hospital
- Maryborough Hospital
- Mater Health Services North Queensland
- Mater Hospital Brisbane
- Mater Misericordiae Hospital, Bundaberg
- Mater Misericordiae Hospital, Gladstone
- Mater Misericordiae Hospital, Mackay
- Mater Misericordiae Hospital, Rockhampton
- Mater Private Hospital Brisbane
- Mater Private Hospital Redland
- Mater Private Hospital Springfield
- Nambour General Hospital
- Nambour Selangor Private Hospital
- Noosa Hospital
- North West Private Hospital
- Peninsula Private Hospital
- Pindara Private Hospital
- Prince Charles Hospital
- Princess Alexandra Hospital
- Queen Elizabeth II Jubilee Hospital
- Queensland Children’s Hospital
- Redcliffe Hospital
- Redland Public Hospital
- Rockhampton Base Hospital
- Royal Brisbane and Women's Hospital
- Sunshine Coast University Hospital
- St Andrews Hospital, Toowoomba
- St Andrews Private Hospital, Ipswich
- St Andrews War Memorial Hospital, Spring Hill
- St Stephen's Private Hospital
- St Vincent’s Private Hospital Northside
- St Vincents Hospital
- Sunnybank Private Hospital
- Sunshine Coast University Hospital
- Sunshine Coast University Private Hospital
- Toowoomba Hospital
- Townsville Hospital
- Wesley Hospital
Northern Territory
- Alice Springs Hospital
- Darwin Private Hospital
- Royal Darwin Hospital
Western Australia
- Albany Regional Hospital
- Armadale Health Service
- Bethesda Hospital
- Bethesda Hospital
- Bethesda Hospital
- Bunbury Regional Hospital
- Busselton Health Campus
- Fiona Stanley Hospital
- Fremantle Hospital
- Geraldton Hospital
- Hollywood Private Hospital
- Joondalup Health Campus
- Kalgoorlie Health Campus
- Mount Hospital
- Osborne Park Hospital
- Peel Health Campus
- Rockingham General Hospital
- Royal Perth Hospital
- Sir Charles Gairdner Hospital
- St John of God Bunbury Hospital
- St John of God Geraldton Hospital
- St John of God Midland Hospital
- St John of God Mt Lawley Hospital
- St John of God Murdoch Hospital
- St John of God Subiaco Hospital
- Waikiki Private Hospital
South Australia
- Ashford Community Hospital
- Burnside War Memorial Hospital
- Calvary Adelaide Hospital
- Calvary Central Districts Hospital
- Calvary North Adelaide Hospital
- Clare Hospital and Health Services
- Flinders Medical Centre
- Flinders Private Hospital
- Gawler Health Services
- Glenelg Community Hospital
- Lyell McEwin Hospital
- Modbury Public Hospital
- Mount Barker District Soldiers Memorial Hospital
- Mount Gambier Hospital
- Murray Bridge Soldiers Memorial Hospital
- Naracoorte Health Service
- Noarlunga Hospital
- North Eastern Community Hospital
- Parkwynd Private Hospital
- Port Augusta Hospital
- Port Lincoln Hospital
- Port Pirie Regional Health Service
- Queen Elizabeth Hospital
- Riverland General Hospital
- Royal Adelaide Hospital
- South Coast District Hospital
- Sportsmed SA
- St Andrews Private Hospital
- Stirling District Hospital
- The Memorial Hospital
- Western Hospital
- Whyalla Hospital and Health Service
- Women's and Children's Hospital
Tasmania
- Calvary Health Care St Lukes
- Calvary Health Care, St Johns
- Calvary Hospital
- Hobart Private Hospital
- Launceston General Hospital
- North-West Private Hospital
- North West Regional Hospital, Burnie Campus
- Royal Hobart Hospital
Maria Inacio, South Australian Health and Medical Research Institute (SAHMRI) ROSA@sahmri.com
The Registry of Senior Australians (ROSA) is a cross-sectoral data platform designed to monitor the health, service utilisation, medication use, mortality, and other outcomes of people receiving aged care services in Australia. ROSA brings together datasets collected from the aged care and health care sector by the Commonwealth and state health authorities, to provide us with a full picture of the ageing pathway for individuals in aged care. ROSA produces evidence to guide decision-making for quality, coordinated, efficient, innovative and age-friendly services and practices.
Like other Australian clinical quality registries, ROSA was designed to monitor the effectiveness and appropriateness of aged care services provided to older Australians and to identify variance and advise on best practices. In addition to conducting comprehensive reviews of its captured population, including evaluations of aged care pathways and service utilisation, ROSA also has an 'Outcome Monitoring System' of quality and safety indicators for aged care providers and facilities.
- Reported in an annual report
- Reported in other public reports
- Shared with clinicians
- Shared with consumers
- Reported to aged care providers, aged care providers peak bodies, policy makers (i.e. Aged Care Quality and Safety Commission, Royal Commission into Aged Care Quality and Safety)
Nil
Nil
Not applicable. ROSA is a registry that monitors South Australians seeking aged care services each year. It uses existing information captured by the Commonwealth National Aged Care Data Clearinghouse, Medicare Benefits Schedule, Pharmaceutical Benefits Scheme and the National Death Index, linked to South Australian hospitalisation, emergency department presentations and ambulance services datasets to monitor its cohort. By bringing together these diverse datasets it captures the whole picture of the ageing pathway.
Associate Professor Daniel Ellis, Director of Trauma, Royal Adelaide Hospital (CALHN), Co-Chair, South Australian Trauma System, dan.ellis@sa.gov.au
Nicole Kelly, Trauma Service Nursing Director, Royal Adelaide Hospital (CALHN), Co-Chair, South Australian Trauma System, nicole.kelly@sa.gov.au
The South Australian Trauma Registry collects information on all cases of major trauma admitted to the Royal Adelaide Hospital, Flinders Medical Centre, Women’s and Children’s Hospital and the Lyell McEwin Hospital. The information collected includes injuries sustained, mechanism of injury, details of care received including transfer (from injury scene to a hospital and between hospitals) and patient outcome. Data is extracted from SA Ambulance Service, MedSTAR, the clinical record and hospital systems which provide medical imaging and pathology reports.
Reports from the SATR inform service providers about the quality of health care on a continuous basis in the different registry sites. The information is reported in various ways to the trauma clinical teams and is used to better understand opportunities for quality improvement. Clinical Indicator reports, published twice a year, bring together data from each of the hospital sites in addition to the production of ad hoc reports. Data from the SATR is also collated and reported (de-identified) to the Australian Trauma Quality Improvement Program led by Monash University (under an ethics agreement).
- Shared with clinicians
- Reported in other (non-public) reports including clinical audits and clinical indicator reports
- Feedback to contributing clinicians
- Reported to State/Territory health departments
Currently no collection of any post-discharge outcome measures on trauma patients in South Australia thus the SATR does not include any Patient Reported Outcome Measures (PROMs)
The SATR does not report on patient reported experience measures (PREMS). All patient reported experiences for SA Health are recorded via the patient feedback platform on the Safety Learning System (SLS)
All four major metropolitan hospitals in South Australia participate in contributing data to the SA Trauma Registry which includes:
- SA’s Level 1 Adult Major Trauma Centres of the Royal Adelaide Hospital and Flinders Medical Centre
- SA’s Level 1 Paediatric Major Trauma Centre - Women’s and Children’s Hospital
- SA’s Level 3 Metropolitan Trauma Centre - the Lyell McEwin Hospital
Nil
Peter Gibson, University of Newcastle, peter.gibson@newcastle.edu.au, asar@thoracic.org.au
The Australasian Severe Asthma Network (ASAN) is a multicentre clinical research network that:
- Collects and reports on data from people with severe asthma
- Facilitates clinical research in this population, and
- Seeks to improve clinical practice for this condition.
The ASAN provides a mechanism for sharing information which helps researchers and clinicians to better understand severe asthma and develop optimised clinical management strategies. The ASAN collects data relating to patients who are diagnosed with Severe Refractory Asthma (SA) and who are recruited from participating sites across Australia, Singapore, and New Zealand. All information collected from affiliate sites are securely stored in the main data repository. Access to the database is restricted to authorised users.
- Reported in Annual Report
- Reported in other public reports
- Shared with clinicians
- Shared with consumers
- Shared with medical colleges
- Asthma Control Questionnaire (ACQ)
- Asthma Quality Of Life Questionnaire (AQLQ)
Nil
https://www.thoracic.org.au/researchawards/asar-sites
Victoria
- The Alfred Hospital
- Frankston Hospital
New South Wales
- Campbelltown Hospital
- Concord Repatriation General Hospital
- John Hunter Hospital
- Liverpool Hospital
- St George Specialist Centre
- St Vincent’s Clinic
- Westmead Hospital
- Woolcock Medical Research Institute
Western Australia
- Fiona Stanley Hospital
Queensland
- Princess Alexandra Hospital
South Australia
- Royal Adelaide Hospital
Peter Gibson, Hunter Medical Research Institute, peter.gibson@newcastle.edu.au,asar@thoracic.org.au
The Australian Benralizumab Registry (the ABenRA) collects and reports on data from people with severe refractory eosinophilic asthma who receive benralizumab:
- As part of the PBS subsidised benralizumab treatment cycle, and the Pharmaceutical Benefits Scheme (PBS) Section 100 Special Authority Program, or
- For severe refractory eosinophilic asthma outside of the PBS restrictions.
The ABenRA provides a mechanism for sharing information which will help researchers and clinicians to better understand the use, efficacy, and safety associated with the treatment of severe asthma with benralizumab.
The aim of the registry is to assess the change in patient reported asthma related symptoms after enrolment in the benralizumab registry following initiation of benralizumab in a real-world setting in the full study population and pre-specified subgroups.
- Reported in Annual Report
- Reported in other public reports
- Shared with clinicians
- Shared with medical colleges
- Asthma Control Questionnaire (ACQ)
- Asthma Quality of Life Questionnaire (AQLQ)
Nil
https://www.thoracic.org.au/researchawards/asar-sites
New South Wales
- Concord Repatriation General Hospital
- John Hunter Hospital
- St George Specialist Centre
- St Vincent’s Clinic
- Westmead Hospital
- Woolcock Institute of Medical Research
Western Australia
- Fiona Stanley Hospital
Victoria
- Frankston Hospital
Queensland
- Princess Alexandra Hospital
South Australia
- Royal Adelaide Hospital
Maryam Tabesh, St Vincent’s Hospital Melbourne, maryam.tabesh@svha.org.au
Scleroderma is a multisystem disease of unknown aetiology which has the highest disease-related morbidity and mortality of the autoimmune rheumatic diseases. The Australian Scleroderma Interest Group (ASIG) is a national collaboration of rheumatologists, with a special interest in improving the outcomes of patients with scleroderma.
ASIG established the ASCS, a longitudinal observational cohort that provides a framework for clinical and laboratory research enabling collaborations with other Australian researchers and internationally.
The primary objective of the ASCS is to enhance clinical care by increasing the rate of screening for scleroderma-related cardiopulmonary complications to allow earlier identification of patients at high risk, and institution of timely treatment. Other objectives include:
- Contribution to research into predisposing factors for serious complications
- National data linkage to quantify burden of disease and disease outcomes
- Contribution to an understanding of the most effective treatments
- Foster research in systemic sclerosis among early career rheumatologists and advanced trainee
- Reported in other public reports
- Shared with clinicians
- Shared with consumers
- Scleroderma Health Assessment Questionnaire (sHAQ)
- General Health Assessment Questionnaire (HAQ)
- Short Form 36 (SF-36)
- PROMIS-29 Profile 2.0
- UCLA Scleroderma Clinical Trial Consortium Gastrointestinal Tract (UCLA SCTC GIT 2.0)
- Instrument
- Functional Assessment of Chronic Illness Therapy (FACIT)
Nil
Australian Capital Territory
- Canberra Hospital
New South Wales
- John Hunter Hospital
- Royal Prince Alfred Hospital
South Australia
- Royal Adelaide Hospital
Victoria
- Monash Medical Centre
- St. Vincent’s Hospital Melbourne
Western Australia
- Fiona Stanley Hospital
- Royal Perth Hospital
Tasmania
- Hobart Private Hospital
Nil
Professor Susannah Ahern, Academic Lead, Monash University,susannah.ahern@monash.edu
Isabella Hall, Registry Coordinator, Monash University, Med-acfdregistry@monash.edu
The ACFDR is a population-level clinical registry that aims to accurately characterise the demographics, changing patterns of disease and treatments, morbidity and mortality of the population of patients with cystic fibrosis (CF) over time. The registry captures all people diagnosed with CF who attend participating specialist CF treatment centres in Australia (including outreach services), which is estimated to cover over 90% of patients diagnosed with CF nationally. The ACFDR uses either opt-in consent (mainly for paediatric patients) or opt-out consent (for some adult patients) to collect baseline and longitudinal information. Information is collected annually and per hospital or clinic encounter for each patient.
The ACFDR has contributed significantly to our understanding of CF in Australia through monitoring trends in measures such as age at diagnosis, method of diagnosis, lung function and weight over time, CF-related complications and treatments, transplantation, mortality and expected age of survival.
The registry aims to improve quality of care by monitoring and benchmarking patient outcomes in individual CF centres compared to each other, and compared to their own site over time. The ACFDR is increasingly being used to monitor the impact of new therapies, and to support clinical trials. The ACFDR collaborates with international CF registries via an International CF Registries Harmonisation Committee and with the John Hopkins-led CFTR2 genetic mutation database.
The ACFDR produces:
- A public Annual Report
- Site-specific annual centre trend and Centre Comparison (benchmarked) reports to participating clinicians and CF teams
- Jurisdictional reports
- Annual patient-facing Infographic
A project is underway that is exploring suitable PROMs for inclusion in the registry.
Nil
Queensland
- Gold Coast University Hospital
- Mater Hospital
- Queensland Children Hospital
- The Prince Charles Hospital
New South Wales
- Gosford Hospital
- John Hunter Children's Hospital
- John Hunter Hospital – Adults
- Royal Prince Alfred Hospital
- Sydney Children's Hospital
- The Children's Hospital at Westmead
- Westmead Hospital
Tasmania
- Launceston General Hospital
- North West Regional Hospital Burnie
- Royal Hobart Children Hospital
- Tasmanian Adult CF Service
Victoria
- Monash Medical Centre
- Royal Children's Hospital
- The Alfred Hospital
Western Australia
- Perth Children's Hospital
- Sir Charles Gairdner Hospital
South Australia
- Royal Adelaide Hospital
- Women's and Children's Hospital
Australian Capital Territory
- The Canberra Hospital – Adults
- The Centenary Hospital for Women and Children
The Alfred HREC Protocol Number: HREC/16/Alfred/187
Ancelin McKimmie, Monash University, ancelin.mckimmie@monash.edu
The Australia New Zealand Trauma Registry (ATR) collects 90 data-points in accordance with the Bi-national Trauma Minimum Dataset for Australia and New Zealand, for severely injured patients (ISS>12) or death after injury, from 28 Australian and seven New Zealand major trauma centres. The ATR provides risk adjusted outcomes to trauma centres and continues to increase its capture of major trauma through rigorous recruitment. The ATR focuses on monitoring trauma care, from time of incident to discharge from definitive care, in order to reflect and act upon emerging trends and demands on the trauma system across Australia and New Zealand.
Collecting and analysing information about trauma patients, their management and their injury outcomes informs future improvements to health service provision and development, with the long term societal aim of reducing preventable deaths and permanent disability as a result of injuries.
- Reported in Annual Report
- Shared with clinicians
- Shared with hospital executive
Nil
Nil
Australian Capital Territory
- Canberra Hospital
New South Wales
- John Hunter Children’s Hospital
- John Hunter Hospital
- Liverpool Hospital
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- St George Hospital
- St Vincent’s Hospital
- Sydney Children’s Hospital
- The Children’s Hospital at Westmead
- Westmead Hospital
Northern Territory
- Royal Darwin Hospital
Queensland
- Gold Coast University Hospital
- Princess Alexandra Hospital
- Queensland Children’s Hospital
- Royal Brisbane and Women’s Hospital
- Sunshine Coast University Hospital
- Townsville Hospital
South Australia
- Flinders’ Medical Centre
- Royal Adelaide Hospital
- Women’s and Children’s Hospital
- Lyell McEwin Hospital
Tasmania
- Royal Hobart Hospital
Victoria
- Alfred Hospital
- Royal Children’s Hospital
- Royal Melbourne Hospital
Western Australia
- Perth Children’s Hospital
- Royal Perth Hospital
New Zealand
- Auckland City Hospital
- Christchurch Hospital
- Dunedin Hospital
- Middlemore Hospital
- Starship Hospital
- Waikato Hospital
- Wellington Regional Hospital
Monash University is contracted to manage the ATR database, including data storage, safety, security, and the provision of analytical support services.
Sue Huckson, Australian and New Zealand Intensive Care Society,sue.huckson@anzics.com.au
The Australian and New Zealand Intensive Care Society (ANZICS) Centre for Outcome and Resource Evaluation (CORE) is a bi-national peer review and quality assurance program which has provided audit and analysis of the performance of Australian and New Zealand intensive care since 1992. This capability is uniquely provided by ANZICS, which offers an overview across regional, state, federal and international jurisdictions.
ANZICS CORE is made up of 5 data sets:
- The Adult Patient Database (APD)
- The Australian and New Zealand Paediatric Intensive Care (ANZPIC) dataset
- The Critical Care Resources (CCR) dataset
- Extra Corporeal Membrane Oxygenation (ECMO) dataset
- The Central line associated bloodstream Infections (CLABSI) Registry.
Over 180 sites across Australia and New Zealand submit data regularly to the registries contributing approximately 200,000 individual patient records every year. There are over 2.5 million individual de-identified ICU patient episodes stored in the registry warehouse since 1992.
The primary outcome reported by the ANZICS registries to contributing sites is in-hospital mortality. However, the overall long-term survival outcomes of patients who leave ICU alive are unknown.
The aims of the ANZICS CORE Registry Program are:
- Provision of comparative benchmarking reports to submitting ICUs and health departments detailing variation in process measures, quality of care indicators and risk-adjusted clinical outcomes
- Identification and analysis of outlier ICUs
- Provision of Data Quality training workshops to support submission of high quality data
- Assist researchers to identify potential areas for improvement of Intensive Care practices and patient outcomes.
- Reported in Annual Report
- Shared with clinicians
- Shared with consumers
- Shared with hospital executive
- Online clinical reports available to all submitting units
- Formalised quarterly reports to all jurisdictional funders, with access to online data and reports
- Results of annual survey of Critical Care Resources results provided to submitting units and jurisdictions
- Activity reports detailing adult and paediatric Intensive Care practices, resources and outcomes produced annually
- 15-20 publications in peer-reviewed journals per year
In development
In development
Australian Capital Territory
- Calvary Hospital (Canberra) ICU
- Calvary John James Hospital ICU
- Canberra Hospital ICU
- National Capital Private Hospital ICU
New South Wales
- Armidale Rural Referral Hospital ICU
- Bankstown-Lidcombe Hospital ICU
- Bathurst Base Hospital ICU
- Blacktown Hospital ICU
- Bowral Hospital HDU
- Broken Hill Base Hospital & Health Services ICU
- Calvary Health Care Riverina ICU
- Calvary Mater Newcastle ICU
- Campbelltown Hospital ICU
- Canterbury Hospital ICU
- Coffs Harbour Health Campus ICU
- Concord Hospital ICU
- Dubbo Base Hospital ICU
- Fairfield Hospital ICU
- Gosford Hospital ICU
- Gosford Private Hospital ICU
- Goulburn Base Hospital ICU
- Grafton Base Hospital ICU
- Griffith Base Hospital ICU
- Hornsby Ku-ring-gai Hospital ICU
- Hurstville Private Hospital ICU
- John Hunter Children’s Hospital PICU
- John Hunter Hospital ICU
- Kareena Private Hospital ICU
- Kempsey District Hospital HDU
- Lake Macquarie Private Hospital ICU
- Lismore Base Hospital ICU
- Liverpool Hospital ICU
- Macquarie University Private Hospital ICU
- Manly Hospital & Community Health ICU
- Manning Rural Referral Hospital ICU
- Mater Private Hospital (Sydney) ICU
- Mona Vale Hospital ICU
- Nepean Hospital ICU
- Newcastle Private Hospital ICU
- North Shore Private Hospital ICU
- Norwest Private Hospital ICU
- Orange Base Hospital ICU
- Port Macquarie Base Hospital ICU
- Prince of Wales Hospital ICU
- Prince of Wales Private Hospital ICU
- Royal North Shore Hospital ICU
- Royal Prince Alfred Hospital ICU
- Shoalhaven Hospital ICU
- South East Regional Hospital ICU
- St George Hospital CICU
- St George Hospital ICU
- St George Hospital ICU2
- St George Private Hospital ICU
- St Vincent's Hospital ICU
- St Vincent's Private Hospital ICU
- Strathfield Private Hospital ICU
- Sutherland Hospital & Community Health Services ICU
- Sydney Adventist Hospital ICU
- Sydney Children's Hospital PICU
- Sydney Southwest Private Hospital ICU
- Tamworth Base Hospital ICU
- The Children's Hospital at Westmead PICU
- The Chris O’Brien Lifehouse ICU
- Tweed Heads District Hospital ICU
- Wagga Wagga Base Hospital & District Health ICU
- Westmead Hospital ICU
- Westmead Private Hospital ICU
- Wollongong Hospital ICU
- Wollongong Private Hospital ICU
- Wyong Hospital ICU
Northern Territory
- Alice Springs Hospital ICU
- Royal Darwin Hospital ICU
Queensland
- Brisbane Private Hospital ICU
- Buderim Private Hospital ICU
- Bundaberg Base Hospital ICU
- Caboolture Hospital HDU
- Cairns Hospital ICU
- Gold Coast Private Hospital ICU
- Gold Coast University Hospital ICU
- Gold Coast University Hospital ICU - Paeds
- Greenslopes Private Hospital ICU
- Hervey Bay Hospital ICU
- Holy Spirit Northside Hospital ICU
- Ipswich Hospital ICU
- John Flynn Private Hospital ICU
- Logan Hospital ICU
- Mackay Base Hospital ICU
- Mater Adults Hospital ICU
- Mater Health Services North Queensland ICU
- Mater Private Hospital ICU
- Mount Isa Hospital ICU
- Noosa Hospital ICU
- Pindara Private Hospital ICU
- Princess Alexandra Hospital ICU
- Queen Elizabeth II Jubilee Hospital ICU
- Queensland Children's Hospital PICU
- Redcliffe Hospital ICU
- Robina Hospital ICU
- Rockhampton Hospital ICU
- Royal Brisbane and Women's Hospital ICU
- St Andrew's Hospital Toowoomba ICU
- St Andrew's War Memorial Hospital ICU
- St Vincent's Hospital ICU
- Sunnybank Hospital ICU
- The Prince Charles Hospital ICU
- Sunshine Coast University Hospital ICU
- Sunshine Coast University Hospital ICU - Paeds
- The Sunshine Coast Private Hospital ICU
- The Townsville Hospital ICU
- The Townsville Hospital ICU - Paeds
- The Wesley Hospital ICU
- Toowoomba Hospital ICU
South Australia
- Ashford Community Hospital ICU
- Calvary North Adelaide Hospital ICU
- Calvary Wakefield Hospital ICU
- Flinders Medical Centre ICU
- Flinders Private Hospital ICU
- Lyell McEwin Hospital ICU
- Royal Adelaide Hospital ICU
- St Andrew's Hospital ICU
- The Memorial Hospital ICU
- The Queen Elizabeth ICU
- Western Hospital
- Women's and Children's Hospital PICU
Tasmania
- Launceston General Hospital ICU
- North West Regional Hospital ICU
- Royal Hobart Hospital ICU
- Royal Hobart Hospital NICU/PICU
Victoria
- Albury Wodonga Health ICU
- Alfred Hospital ICU
- Austin Hospital ICU
- Ballarat Health Services ICU
- Bendigo Health Care Group ICU
- Box Hill Hospital ICU
- Cabrini Hospital ICU
- Central Gippsland Health Service ICU
- Dandenong Hospital ICU
- Epworth Eastern Private Hospital ICU
- Epworth Freemasons Hospital ICU
- Epworth Geelong ICU
- Epworth Hospital ICU
- Footscray Hospital ICU
- Frankston Hospital ICU
- Goulburn Valley Health ICU
- Holmesglen Private Hospital ICU
- John Fawkner Hospital ICU
- Knox Private Hospital ICU
- Latrobe Regional Hospital ICU
- Maroondah Hospital ICU
- Melbourne Private Hospital ICU
- Mildura Base Hospital ICU
- Monash Children's Hospital PICU
- Monash Medical Centre-Clayton Campus ICU
- Northeast Health Wangaratta ICU
- Peninsula Private Hospital ICU
- Royal Children's Hospital PICU
- Royal Melbourne Hospital ICU
- South West Healthcare ICU
- St John Of God Hospital (Berwick) ICU
- St John Of God Hospital (Ballarat) ICU
- St John of God Hospital (Bendigo) ICU
- St John Of God Hospital (Geelong) ICU
- St Vincent's Hospital ICU
- St Vincent's Private Hospital Fitzroy ICU
- Sunshine Hospital ICU
- The Bays Hospital ICU
- The Northern Hospital ICU
- The Valley Private Hospital ICU
- University Hospital Geelong ICU
- Warringal Private Hospital ICU
- Western District Health Service ICU
- Western Private Hospital ICU
- Wimmera Health Care Group ICU
Western Australia
- Armadale Health Service ICU
- Bunbury Regional Hospital ICU
- Fiona Stanley Hospital ICU
- Joondalup Health Campus ICU
- Mount Hospital ICU
- Perth Children's Hospital PICU
- Rockingham General Hospital ICU
- Royal Perth Hospital ICU
- Sir Charles Gairdner Hospital ICU
- St John Of God Health Care (Subiaco) ICU
- St John Of God Hospital (Murdoch) ICU
- St John of God Midland Public & Private ICU
New Zealand
- Auckland City Hospital CV ICU
- Auckland City Hospital DCCM
- Christchurch Hospital ICU
- Dunedin Hospital ICU
- Greymouth Hospital ICU
- Hawkes Bay Hospital ICU
- Hutt Hospital ICU
- Middlemore Hospital ICU
- Nelson Hospital ICU
- North Shore Hospital ICU
- Palmerston North Hospital ICU
- Rotorua Hospital ICU
- Southern Cross Hospital ICU
- Southland Hospital ICU
- Starship Children's Hospital PICU
- Taranaki Health ICU
- Tauranga Hospital ICU
- Timaru Hospital ICU
- Waikato Hospital ICU
- Wairau Hospital ICU
- Wakefield Hospital ICU
- Whanganui Hospital ICU
- Wellington Hospital ICU
- Whangarei Area Hospital, Northland Health Ltd ICU
A Declared Quality Assurance Activity under the Commonwealth Health Insurance Act 1973
Dominique Cadilhac, The Florey Institute of Neuroscience and Mental Health,admin@auscr.com.au
The AuSCR provides a platform for participating hospitals to collect data on processes of care and outcomes for patients admitted with acute stroke or transient ischaemic attack (TIA). Data are used to improve the quality of stroke care nationally. The process of care variables collected align with the National Clinical Guidelines for Stroke Management.
The AuSCR Office centralises the collection of follow-up data on patient reported outcomes three to six months after admission. Outcomes collected include stroke recurrence, hospital readmission, health status, disability (as measured with the modified Rankin Scale), and quality of life measures (using the EuroQol EQ-5D-3L and Visual Analogue Scale).
- Reported in Annual Report
- Shared with clinicians
- Shared with consumers
- Shared with government funding bodies (in some states)
- Feedback to contributing clinicians
- Reported to State/Territory health departments
- Survivor status
- Place of residence
- Living alone status
- Subsequent stroke since discharge
- Readmission to hospital
- Quality of life indicators (EuroQOL EQ-5D-3L)
- Modified Rankin Scale
- Would like an information pack from the Stroke Foundation
Nil
https://auscr.com.au/about/list-of-participating-hospitals/
Australian Capital Territory
- Canberra Health Service
- North Canberra Hospital
New South Wales
- John Hunter Children's Hospital
Queensland
- Bundaberg Hospital
- Caboolture Hospital
- Cairns Hospital
- Gold Coast University Hospital
- Hervey Bay Hospital
- Ipswich Hospital
- Logan Hospital
- Mackay Base Hospital
- Mater Hospital Brisbane
- Prince Charles Hospital
- Princess Alexandra Hospital
- Queen Elizabeth II Jubilee Hospital
- Queensland Children’s Hospital
- Redcliffe Hospital
- Redland Hospital
- Rockhampton Hospital
- Royal Brisbane and Women’s Hospital
- Sunshine Coast University Hospital
- Toowoomba Hospital
- Townsville University Hospital
South Australia
- Flinders Medical Centre
- Lyell McEwin Hospital
- Riverland Regional Health Service – Berri Campus
- Royal Adelaide Hospital
Tasmania
- Launceston General Hospital
- North West Regional Hospital
- Royal Hobart Hospital
Victoria
- Albury Wodonga Health – Albury Campus
- Albury Wodonga Health – Wodonga Campus
- Alfred Hospital
- Austin Hospital
- Bairnsdale Regional Health Service
- Bass Coast Health
- Bendigo Health
- Box Hill Hospital
- Central Gippsland Health Service
- Echuca Regional Health
- Goulburn Valley Health
- Grampians Health Ballarat
- Grampians Health Horsham
- Hamilton Base Hospital
- Latrobe Regional Health
- Mildura Base Public Hospital
- Monash Children’s Hospital
- Monash Medical Centre
- Northern Hospital
- Peninsula Health – Frankston Hospital
- Royal Children’s Hospital
- Royal Melbourne Hospital
- St Vincent’s Hospital Victoria
- Sunshine Hospital – Western Health
- Swan Hill District Health
- University Hospital Geelong
- Warrnambool Base Hospital
- Werribee Mercy Hospital
- West Gippsland Hospital
Western Australia
- Fiona Stanley Hospital
- Joondalup Health Campus
- Royal Perth Hospital
- Sir Charles Gairdner Hospital
- St John of God Midland Public Hospital
Richard Page, St John of God Hospital Geelong, Australia, richard.page@deakin.edu.au
The aim of the Barwon Joint Registry is to provide a mechanism for quality assurance, quality improvement and research.
The registry monitors all consenting patients undergoing joint replacement surgery at University Hospital Geelong and hip, knee and shoulder replacements at St John of God Hospital Geelong.
The registry is an opt-out, prospective database.
Outcomes include patient reported outcomes (pain, function, quality of life), complications, operative details including prosthesis type, patient details and co-morbidities.
- Feedback to contributing clinicians
- Shared with clinicians
- Reported in Annual Report
- Shared with consumers
- Shared with hospital executive
- Shared with medical colleges
- Oxford Scores (hip, knee, shoulder)
- EQ-5D-5L
- Multi-attribute Predictor Tool (MAPT)
- WOMAC
- Constant Shoulder Score
- Quick DASH
- Patient Expectations
- Patient Satisfaction
Nil
Victoria
- University Hospital Geelong
- St John of God Hospital Geelong