List of generic PROMs
| Group | Condition | Name | Abbreviated | Country developed | Year validated | Objective | Number of items | Number of dimensions | Name of dimensions | Self-report? | Reference of the original validation papers | Licencing or restrictions on use? | Fees apply | Weblink/Contact details for authors for licensing information | Link to PROM survey form (if available) | Consensus-based Standards for the Selection of Health Status Measurement Instruments (COSMIN) available? |
COSMIN reference/s (if available) |
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| Generic | Health related quality of life | 15-Dimensional Health-Related Quality of Life | 15D | Finland | 1995 | To measure health-related quality of life and its utility, and to evaluate the efficacy/effectiveness of health interventions. | 15 | 15 | Mobility; Vision; Hearing; Breathing; Sleeping; Eating; Speech; Excretion; Usual activities; Mental function; Discomfort; Depression; Destress; Vitality; Sexual activity | Yes | Sintonen H. The 15D-measure of health-related quality of life: Reliability, validity and sensitivity of its health state descriptive system. National Centre for Health Program Evaluation, Working Paper 41, Melbourne 1994. Sintonen H. The 15D-measure of health-related quality of life. II. Feasibility, reliability and validity of its valuation system. National Centre for Health Program Evaluation, Working Paper 42, Melbourne. 1995 Feb. Sintonen H. The 15D instrument of health-related quality of life: properties and applications. Annals of medicine. 2001 Jan 1;33(5):328-36. |
Yes | Unknown | https://15d-instrument.net/15d/ | Nil | Yes | Makai P, Brouwer WB, Koopmanschap MA, Stolk EA, Nieboer AP. Quality of life instruments for economic evaluations in health and social care for older people: a systematic review. Social science & medicine. 2014 Feb 1;102:83-93. |
| Generic | Activities of daily living | Activity Measure Post-Acute Care | AM-PAC | USA | 2003 | To assess a patient's degree of difficulty or assistance in performing specific functional tasks. | 41 | 3 | Applied cognitive (inpatient or community); Personal and instrumental/daily activity (inpatient or community); Movement and physical mobility (inpatient ambulator or community ambulator) | Yes | Andres PL, Haley SM, Ni PS. Is patient-reported function reliable for monitoring postacute outcomes?. American journal of physical medicine & rehabilitation. 2003 Aug 1;82(8):614-21. Haley SM, Andres PL, Coster WJ, Kosinski M, Ni P, Jette AM. Short-form activity measure for post-acute care. Archives of physical medicine and rehabilitation. 2004 Apr 1;85(4):649-60. |
Yes | Yes, fees may apply | https://am-pac.com/ | Nil | Yes | Gordon, S., Grimmer, K. A., & Barras, S. (2019). Assessment for incipient hospital-acquired deconditioning in acute hospital settings: A systematic literature review. Journal of Rehabilitation Medicine, 51(6), 397–404. https://doi.org/10.2340/16501977-2546 |
| Generic | Activities of daily living | Activities Scale for Kids | ASK | Canada | 2000 | To measure physical disability in children with musculoskeletal disorders. | 30 | 9 | Personal care; Dressing; Eating and Drinking; Miscellaneous; Play; Locomotion; Standing Skills; Stairs; Transfers | Yes | Young NL, Williams JI, Yoshida KK, Wright JG. Measurement properties of the activities scale for kids. J Clin Epidemiol. 2000 Feb;53(2):125-37. doi: 10.1016/s0895-4356(99)00113-4. PMID: 10729684. | Yes | Yes, fees may apply | https://eprovide.mapi-trust.org/instruments/activities-scale-for-kids-c… https://eprovide.mapi-trust.org/instruments/activities-scale-for-kids-c… |
Nil | Yes | Harvey A, Robin J, Morris ME, Graham HK, Baker R. A systematic review of measures of activity limitation for children with cerebral palsy. Developmental Medicine & Child Neurology. 2008 Mar;50(3):190-8 Phillips RL, Olds T, Boshoff K, Lane AE. Measuring activity and participation in children and adolescents with disabilities: A literature review of available instruments. Australian occupational therapy journal. 2013 Aug;60(4):288-300. |
| Generic | Adelphi Adherence Questionnaire | ADAQ | UK | 2022 | Assesses medication adherence. | 13 | 2 | Medication adherence behaviours; Drivers of non adherence | Yes | Bentley S, Morgan L, Exall E, Arbuckle R, Rossom RC, Roche N, Khunti K, Higgins V, Piercy J. Qualitative Interviews to Support Development and Cognitive Debriefing of the Adelphi Adherence Questionnaire (ADAQ©): A Patient-Reported Measure of Medication Adherence Developed for Use in a Range of Diseases, Treatment Modalities, and Countries. Patient Prefer Adherence. 2022 Sep 15;16:2579-2592. doi: 10.2147/PPA.S358046. PMID: 36133076; PMCID: PMC9484566. | Yes | Yes, fees may apply | https://adelphivalues.com | Nil | None identified in March 2025 | None identified in March 2025 | |
| Generic | Pain | Brief Pain Inventory | BPI | USA | 1994 | To assess the severity of pain and the impact of pain on daily functions. | 32 | 2 | Pain severity; Pain interference | Yes | Cleeland CS, Ryan K. Pain assessment: global use of the Brief Pain Inventory. Annals of the Academy of Medicine, Singapore. 1994 Mar 1;23(2):129-38. Cleeland CS. Pain assessment in cancer. In Effect of cancer on quality of life 2021 Nov 1 (pp. 293-305). CRC Press. |
Yes | Yes, fees may apply | https://www.mdanderson.org/research/departments-labs-institutes/departm… | Nil | Yes | Sultan P, Ando K, Sultan E, et al. A systematic review of patient-reported outcome measures to assess postpartum pain using Consensus Based Standards for the Selection of Health Measurement Instruments (COSMIN) guidelines. British Journal of Anaesthesia. 2021;127(2):264-274. doi:10.1016/j.bja.2021.03.035 |
| Generic | Pain | Brief Pain Inventory - Short Form | BPI-SF | USA | 1983 | To assess the severity of pain and the impact of pain on daily functions. | 9 | No specific domains/dimensions identified | Yes | Daut RL, Cleeland CS, Flanery RC. Development of the Wisconsin Brief Pain Questionnaire to assess pain in cancer and other diseases. Pain. 1983 Oct;17(2):197-210. |
Yes | Unknown | https://www.commondataelements.ninds.nih.gov/report-viewer/25216/Brief%… | Nil | Yes | Sultan P, Ando K, Sultan E, et al. A systematic review of patient-reported outcome measures to assess postpartum pain using Consensus Based Standards for the Selection of Health Measurement Instruments (COSMIN) guidelines. British Journal of Anaesthesia. 2021;127(2):264-274. doi:10.1016/j.bja.2021.03.035 Jumbo SU, MacDermid JC, Kalu ME, Packham TL, Athwal GS, Faber KJ. Measurement properties of the Brief Pain Inventory-Short Form (BPI-SF) and Revised Short McGill Pain Questionnaire Version-2 (SF-MPQ-2) in pain-related musculoskeletal conditions: a systematic review. The Clinical Journal of Pain. 2021 Jun 1;37(6):454-74. |
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| Generic | Activities of daily living | Brighton Musculoskeletal Patient Reported Outcome Measure | BmPROM | UK | 2018 | To measure musculoskeletal health related quality of life for people with musculoskeletal conditions in physiotherapy settings. | 8 | 2 | Functionality; Wellbeing | Yes | Bryant E, Murtagh S, Finucane L, McCrum C, Mercer C, Smith T, Canby G, Rowe DA, Moore AP. The Brighton musculoskeletal Patient-Reported Outcome Measure (BmPROM): An assessment of validity, reliability, and responsiveness. Physiother Res Int. 2018 Jul;23(3):e1715. doi: 10.1002/pri.1715. Epub 2018 May 11. PMID: 29749667; PMCID: PMC6055852. | Yes | Unknown | physiosurvey@brighton.ac.uk | https://www.backtofitnessphysio.com/wp-content/uploads/2018/11/BmPROM.pdf | None identified in March 2025 | None identified in March 2025 |
| Generic | Activities of daily living | Bristol Activities Of Daily Living Scale | BADLS | UK | 1996 | To assess residual capacities and change of abilities in people with dementia. | 20 | 4 | ADLs; Orientation; Self care; Mobility | Bucks RS, Ashworth DL, Wilcock GK, Siegfried K. Assessment of activities of daily living in dementia: development of the Bristol Activities of Daily Living Scale. Age and ageing. 1996 Mar 1;25(2):113-20. | Yes | Unknown | R.S. Bucks, Department of Care of the Elderly, Frenchay Hospital, Bristol | https://www.physio-pedia.com/images/1/1f/Bristal_ADL_scale.pdf | Yes | Sikkes SA, De Lange-de Klerk ES, Pijnenburg YA, Scheltens P. A systematic review of Instrumental Activities of Daily Living scales in dementia: room for improvement. Journal of Neurology, Neurosurgery & Psychiatry. 2009 Jan 1;80(1):7-12 Kelbling E, Ferreira Prescott D, Shearer M, Quinn TJ. An assessment of the content and properties of extended and instrumental activities of daily living scales: a systematic review. Disability and Rehabilitation. 2024 May 7;46(10):1990-9. |
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| Generic | Palliative | Canadian Health Care Evaluation Project Questionnaire | CANHELP | Canada | 2010 | To measure satisfaction with end-of-life care for elderly patients, can be used by both patients and their family members | 38 | 6 | Relationship with doctors; Illness management; Communication; Decision-making; Role of the family; Your well-being | Yes | Heyland DK, Cook DJ, Rocker GM, Dodek PM, Kutsogiannis DJ, Skrobik Y, Jiang X, Day AG, Cohen SR. Defining priorities for improving end-of-life care in Canada. Cmaj. 2010 Nov 9;182(16):E747-52. | No information | Unknown | www.thecarenet.ca | Nil | Yes | Tanco K, Park JC, Cerana A, Sisson A, Sobti N, Bruera E. A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients. Palliative & supportive care. 2017 Feb;15(1):110-24. |
| Generic | Not disease specific | Child Health And Illness Profile-Adolescent Edition | CHIP-AE | USA | 1995 | To self-assess health status in children and adolescents. | 107 | 6 | Discomfort; Disorders; Satisfaction with health; Achievement (of age-appropriate social roles); Risks; Resilience | Yes | Starfield B, Ensminger M, Riley A, McGauhey P, Skinner A, Kim S, Bergner M, Ryan S, Green B. Adolescent health status measurement: development of the Child Health and Illness Profile. Pediatrics. 1993 Feb 1;91(2):430-5. Starfield B, Riley AW, Green BF, Ensminger ME, Ryan SA, Kelleher K, Kim-Harris S, Johnston D, Vogel K. The adolescent child health and illness profile: a population-based measure of health. Medical care. 1995 May 1;33(5):553. |
Yes | Unknown | Barbara Starfield, Department of Health Policy and Management, Johns Hopkins University School of Hygiene and Public Health, Baltimore, Maryland. | Nil | Yes | Spieth LE, Harris CV. Assessment of health-related quality of life in children and adolescents: an integrative review. Journal of pediatric psychology. 1996 Apr 1;21(2):175-93. |
| Generic | Health related quality of life | Child Health Utility-9 Dimensions | CHU9D | UK | 2009 | To measure general health related quality of life in a paediatric population. | 9 | 9 | Worried; Sad; Pain; Tired; Annoyed; Schoolwork/homework; Sleep; Daily routine; Activities | Yes | Stevens K. Developing a descriptive system for a new preference-based measure of health-related quality of life for children. Qual Life Res. 2009 Oct;18(8):1105-13 | Yes | Yes, fees may apply | https://licensing.sheffield.ac.uk/product/CHU-9D | Nil | Yes | Janssens A, Rogers M, Thompson Coon J, et al. A Systematic Review of Generic Multidimensional Patient-Reported Outcome Measures for Children, Part II: Evaluation of Psychometric Performance of English-Language Versions in a General Population. Value in Health. 2015;18(2):334-345. doi:10.1016/j.jval.2015.01.004 |
| Generic | Mental health | Cognitive Fusion Questionnaire | CFQ | UK | 2014 | To measure cognitive fusion, the degree to which a person is entangled with their private experiences. | 7 | No specific domains/dimensions identified | Yes | Gillanders DT, Bolderston H, Bond FW, Dempster M, Flaxman PE, Campbell L, Kerr S, Tansey L, Noel P, Ferenbach C, Masley S, Roach L, Lloyd J, May L, Clarke S, Remington B. The development and initial validation of the cognitive fusion questionnaire. Behav Ther. 2014 Jan;45(1):83-101 | Yes | Unknown | https://contextualscience.org/CFQ | Nil | Yes | Day MA, Lang CP, Newton‐John TR, Ehde DM, Jensen MP. A content review of cognitive process measures used in pain research within adult populations. European Journal of Pain. 2017 Jan;21(1):45-60. | |
| Generic | Breast and prostate neoplasms | Decision Regret Scale | DRS | Canada | 2003 | To measure regret after health care decisions. | 5 | No specific domains/dimensions identified | Yes | Brehaut JC, O'Connor AM, Wood TJ, Hack TF, Siminoff L, Gordon E, Feldman-Stewart D. Validation of a decision regret scale. Medical decision making. 2003 Jul;23(4):281-92. | No information | Unknown | Jamie C. Brehaut, PhD, Ottawa Health Research Institute, Clinical Epidemiology Unit, Ottawa Hospital, Civic Campus, F654 - 1053 Carling Avenue, Ottawa, ON K1Y 4E9, Canada; telephone: (613)798-5555, ext. 13432; e-mail: jbrehaut@ohri.ca. | https://decisionaid.ohri.ca/docs/develop/User_Manuals/UM_Regret_Scale.p… | None identified in March 2025 | None identified in March 2025 | |
| Generic | Acute pain; Chronic pain | Defense and Veterans Pain Rating Scale | DVPRS | USA | 2016 | To measure pain in veterans and defence personnel. | 1 | No specific domains/dimensions identified | Yes | Polomano RC, Galloway KT, Kent ML, Brandon-Edwards H, Kwon KN, Morales C, Buckenmaier C' 3rd. Psychometric Testing of the Defense and Veterans Pain Rating Scale (DVPRS): A New Pain Scale for Military Population. Pain Med. 2016 Aug;17(8):1505-19. doi: 10.1093/pm/pnw105. Epub 2016 Jun 6. PMID: 27272528. | No information | Unknown | Chester C Buckenmaier: Defense and Veterans Center for Integrative Pain Management, Walter Reed National Military Medical Center, Bethesda, Maryland, USA. cbuckenmaier@dvcipm.org | https://www.va.gov/PAINMANAGEMENT/docs/DVPRS_2slides_and_references.pdf | Yes | Goldsmith ES, Taylor BC, Greer N, Murdoch M, MacDonald R, McKenzie L, Rosebush CE, Wilt TJ. Focused evidence review: psychometric properties of patient-reported outcome measures for chronic musculoskeletal pain. Journal of general internal medicine. 2018 May;33:61-70. | |
| Generic | Health related quality of life | DISABKIDS | DISABKIDS | Germany, UK, The Netherlands | 2006 | To assess the health related quality of life of children and adolescents with chronic medical conditions from their own or their parents or caregivers perspectives. | 37 | 6 | Independence; Emotion; Social inclusion; Social exclusion; Physical limitation; Treatment | Yes | The DISABKIDS Group Europe. (2006). The DISABKIDS questionnaires: Quality of life questionnaires for children with chronic conditions - Handbook. Lengerich: Pabst Science Publishers. | Yes | Yes, fees may apply | https://eprovide.mapi-trust.org/instruments/disabkids#need_this_questio… | Nil | Yes | Rothmund M, Meryk A, Rumpold G, et al. A critical evaluation of the content validity of patient-reported outcome measures assessing health-related quality of life in children with cancer: a systematic review. Journal of Patient-Reported Outcomes. 2023;7(1):2. doi:10.1186/s41687-023-00540-8 olans M, Pane S, Estrada MD, Serra‐Sutton V, Berra S, Herdman M, Alonso J, Rajmil L. Health‐related quality of life measurement in children and adolescents: a systematic review of generic and disease‐specific instruments. Value in health. 2008 Jul;11(4):742-64. |
| Generic | Cardiac quality of life | Duke Activity Status Index | DASI | USA | 1989 | To measure functional capacity and to assess aspects of quality of life. | 12 | No specific domains/dimensions identified | Yes | Carter R, Holiday DB, Grothues C, Nwasuruba C, Stocks J, Tiep B. Criterion validity of the Duke Activity Status Index for assessing functional capacity in patients with chronic obstructive pulmonary disease. J Cardiopulm Rehabil. 2002 Jul-Aug;22(4):298-308 | Yes | Unknown | Mark Hlatky, hlatky@stanford.edu Department of Health Policy Encina Commons 619 Crothers Way, Room 200 Stanford, California 94305-6013 (650) 723-6428 (office) |
https://www.mdcalc.com/calc/3910/duke-activity-status-index-dasi | Yes | Liu Y, Li H, Ding N, Wang N, Wen D. Functional status assessment of patients with COPD: a systematic review of performance-based measures and patient-reported measures. Medicine. 2016 May 1;95(20):e3672. Pardo Cladellas Y, Garin Boronat O, Oriol C, Zamora V, Ribera Solé A, Ferrer Forés MM. Patient-centered care in Coronary Heart Disease: what do you want to measure? A systematic review of reviews on patient-reported outcome measures. Qual Life Res. 2023 May; 32 (5): 1405-25. 2023 |
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| Generic | Not disease specific | EuroQoL 5-Dimension 5-Level | EQ-5D-5L | Spain, UK, Denmark, The Netherlands | 2011 | To assess health outcome from a wide variety of interventions on a common scale, for purposes of evaluation, allocation and monitoring | 5 | 5 | Mobility; Self-care; Usual activities; Pain/discomfort; Anxiety/depression | Yes | Herdman M, Gudex C, Lloyd A, Janssen MF, Kind P, Parkin D, Bonsel G, Badia X. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Quality of life research. 2011 Dec;20:1727-36. Janssen MF, Pickard AS, Golicki D, Gudex C, Niewada M, Scalone L, Swinburn P, Busschbach J. Measurement properties of the EQ-5D-5L compared to the EQ-5D-3L across eight patient groups: a multi-country study. Quality of life research. 2013 Sep;22:1717-27. |
Yes | Yes, fees may apply | www.euroqol.org | https://euroqol.org/wp-content/uploads/2023/11/EQ-5D-5LUserguide-23-07.pdf | Yes | Thai TT, Engel L, Perez JK, Tan EJ, Eades S, Sanci L, Mihalopoulos C. A systematic review of health state utility values and psychometric performance of generic preference-based instruments for children and adolescents with mental health problems. Quality of Life Research. 2023 Nov;32(11):3005-26. Lindert J, Bain PA, Kubzansky LD, Stein C. Well-being measurement and the WHO health policy Health 2010: systematic review of measurement scales. The European Journal of Public Health. 2015 Aug 1;25(4):731-40. |
| Generic | Acute pain | Faces Pain Scale | FPS | Australia | 1990 | To measure the intensity of pain in children. | 1 | No specific domains/dimensions identified | Yes | Bieri D, Reeve R, Champion GD, Addicoat L. The Faces Pain Scale for the self-assessment of the severity of pain experienced by children: Development, initial validation and preliminary investigation for ratio scale properties. Pain, 1990;41:139-150 | Yes | Yes, fees may apply | https://eprovide.mapi-trust.org/instruments/faces-pain-scale-revised-ve… | Nil | Yes | Horan MR, Sim JA, Krull KR, Baker JN, Huang IC. A review of patient-reported outcome measures in childhood cancer. Children. 2022 Sep 30;9(10):1497. Tomlinson D, Von Baeyer CL, Stinson JN, Sung L. A systematic review of faces scales for the self-report of pain intensity in children. Pediatrics. 2010 Nov 1;126(5):e1168-98. |
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| Generic | Health related quality of life | Family Reported Outcome Measure | FROM-16 | UK | 2014 | To measure the impact on the quality of life of an adult family member or partner resulting from having a person (of any age) in a family with any disease or condition, across all of medicine. | 16 | 2 | Emotional; Personal and Social Life | Yes | Golics CJ, Basra MK, Finlay AY, Salek S. The development and validation of the Family Reported Outcome Measure (FROM-16)© to assess the impact of disease on the partner or family member. Qual Life Res. 2014 Feb;23(1):317-26 | Yes | Yes, fees may apply | https://www.cardiff.ac.uk/medicine/resources/quality-of-life-questionna… | Yes | Shah R, Ali FM, Finlay AY, Salek MS. Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature. Health and quality of life outcomes. 2021 Dec;19:1-35. | |
| Generic | Chronic conditions | Functional Assessment Of Chronic Illness Therapy Measurement System | FACIT | USA | 1993 | To measure health-related quality of life of people with chronic illnesses. | 27 | 4 | Physical; Functional; Social; Emotional well-being | Yes | Cella DF, Tulsky DS, Gray G, Sarafian B, Linn E, Bonomi A, Silberman M, Yellen SB, Winicour P, Brannon J. The Functional Assessment of Cancer Therapy scale: development and validation of the general measure. Journal of clinical oncology. 1993 Mar;11(3):570-9. Webster K, Odom L, Peterman A, Lent L, Cella D. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Validation of version 4 of the core questionnaire. Quality of Life Research. 1999 Nov 1:604-610. |
Yes | Unknown | https://www.facit.org/ | Nil | Yes | van Roij J, Fransen H, van de Poll-Franse L, Zijlstra M, Raijmakers N. Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments. Quality of Life Research. 2018 Aug;27:1937-55. |
| Generic | Physical activity | Godin Leisure-Time Physical Activity Questionnaire | GLTPAQ | Canada | 1985 | To measure leisure time physical activity in a general population. | 4 | Yes | Godin G, Shephard RJ. A simple method to assess exercise behavior in the community. Can J Appl Sport Sci. 1985 Sep;10(3):141-6 | No information | Unknown | https://thamesvalleyfht.ca/wp-content/uploads/2023/09/Godin-Leisure-Time-Exercise-Questionnaire_070815.pdf | Yes | Andrew NE, Gabbe BJ, Wolfe R, Cameron PA. Evaluation of instruments for measuring the burden of sport and active recreation injury. Sports medicine. 2010 Feb;40:141-61. | |||
| Generic | Not disease specific | Healthy Pathways Child-Report Scales | USA | 2010 | To measure young people's self-assessed health, illness, and wellbeing. | 88 | 16 | Physical comfort; Emotional comfort; Negative stress reaction; Physical activity; Vitality; Peer connectedness; Family connectedness; Teacher connectedness; Active coping; Aggression/bullying; Peer hostility/bully victim; Life satisfaction; Self-worth; Body image; Academic performance; School engagement | Yes | Bevans KB, Riley AW, Forrest CB. Development of the healthy pathways child-report scales. Quality of Life Research. 2010 Oct;19:1195-214. | No information | Unknown | Katherine Bevans, The Children’s Hospital of Philadelphia, 3535 Market Street, Room 1449, Philadelphia, PA 19104-4399 USA; bevans@email.chop.edu | Nil | Yes | Kwon J, Freijser L, Huynh E, Howell M, Chen G, Khan K, Daher S, Roberts N, Harrison C, Smith S, Devlin N. Systematic review of conceptual, age, measurement and valuation considerations for generic multidimensional childhood patient-reported outcome measures. Pharmacoeconomics. 2022 Apr;40(4):379-431. | |
| Generic | Activities of daily living | Hospital for Special Surgery Pediatric Functional Activity Brief Scale | HSS Pedi-FABS | USA | 2013 | To quantify the activity of athletically active children aged 10 to 18 years. | 8 | No specific domains/dimensions identified | Yes | Fabricant PD, Robles A, Downey-Zayas T, Do HT, Marx RG, Widmann RF, Green DW. Development and validation of a pediatric sports activity rating scale: the Hospital for Special Surgery Pediatric Functional Activity Brief Scale (HSS Pedi-FABS). The American journal of sports medicine. 2013 Oct;41(10):2421-9. Fabricant PD, Suryavanshi JR, Calcei JG, Marx RG, Widmann RF, Green DW. The Hospital for Special Surgery Pediatric Functional Activity Brief Scale (HSS Pedi-FABS): Normative Data. Am J Sports Med. 2018 Apr;46(5):1228-1234. doi: 10.1177/0363546518756349. Epub 2018 Mar 7. PMID: 29513554. |
No information | Unknown | Peter Fabricant, Department of Pediatric Orthopaedic Surgery, Hospital for Special Surgery, New York, New York; fabricantp@hss.edu | Nil | Yes | Marshall AN, Root HJ, Valovich McLeod TC, Lam KC. Patient-reported outcome measures for pediatric patients with sport-related injuries: a systematic review. Journal of athletic training. 2022 Apr 1;57(4):371-84. | |
| Generic | Postoperative pain | International Pain Outcomes Questionnaire | IPO | UK | 2013 | To measure post-operative pain and improve quality of life in post-operative patients. | 16 | 3 | Pain intensity and interference; Adverse effects; Perceptions of care | Yes | Rothaug J, Zaslansky R, Schwenkglenks M, Komann M, Allvin R, Backström R, Brill S, Buchholz I, Engel C, Fletcher D, Fodor L. Patients' perception of postoperative pain management: validation of the International Pain Outcomes (IPO) questionnaire. The Journal of Pain. 2013 Nov 1;14(11):1361-70. | No information | Unknown | Judith Rothaug, PhD, Clinic for Anesthesiology and Intensive Care, University Hospital Jena, Erlanger Allee 101, 07743 Jena, Germany. judith.rothaug@med.uni-jena.de | Nil | None identified in March 2025 | None identified in March 2025 |
| Generic | Quality of Life | KIDSCREEN | KIDSCREEN | Europe | 2001 | Designed to obtain a self-report and an external assessment of health-related quality of life in children and adolescents in a wide range of ages and independently of current health status. | 52 | 10 | Physical Well-Being; Psychological Well-Being; Moods and Emotions; Self Perception; Autonomy; Parent Relations and Home Life; Financial Resources; Peers and Social Support; School Environment; Bullying | Yes | Ravens-Sieberer U, Gosch A, Rajmil L, Erhart M, Bruil J, Duer W, Auquier P, Power M, Abel T, Czemy L, Mazur J. KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert review of pharmacoeconomics & outcomes research. 2005 Jun 1;5(3):353-64. | Yes | Unknown | www.kidscreen.org | Nil | Yes | Kwon, J., Freijser, L., Huynh, E. et al. Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures. PharmacoEconomics 40, 379–431 (2022). https://doi.org/10.1007/s40273-021-01128-0 |
| Generic | Quality of Life | KINDL-Revised version | KINDL-R | Germany | 1998 | To assess health-related quality of life in children and adolescents. | 24 | 6 | Physical well-being; Emotional well-being; Self-esteem; Family; Friends; Everyday functioning | Yes | Ravens-Sieberer U, Bullinger M. Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results. Quality of life research. 1998 Jul;7:399-407. Wee HL, Lee WW, Ravens-Sieberer U, Erhart M, Li SC. Validation of the English version of the KINDL® generic children’s health-related quality of life instrument for an Asian population–results from a pilot test. Quality of life research. 2005 May;14:1193-200. |
PubliclYes available | Unknown | https://www.kindl.org/english/ | https://www.kindl.org/contacts/english/ | Yes | Harding L. Children's quality of life assessments: a review of generic and health related quality of life measures completed by children and adolescents. Clinical Psychology & Psychotherapy: An International Journal of Theory & Practice. 2001 Apr;8(2):79-96. De Wit M, Delemarre-van de Waal HA, Pouwer F, Gemke RJ, Snoek FJ. Monitoring health related quality of life in adolescents with diabetes: a review of measures. Archives of disease in childhood. 2007 May 1;92(5):434-9. |
| Generic | Physical functioning, disability | Late-Life Function And Disability Instrument | LLFDI | USA | 2002 | To evaluate physical function and disability in community-dwelling older adults. | 48 | 2 | Function (Upper extremity functioning; Basic lower extremity functioning; Advanced lower extremity functioning); Disability (Frequency: [Social role; Personal role]; Limitation [Instrumental role; Management role]) | Yes | Jette AM, Haley SM, Coster WJ, Kooyoomjian JT, Levenson S, Heeren T, Ashba J. Late life function and disability instrument: I. Development and evaluation of the disability component. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences. 2002 Apr 1;57(4):M209-16. | No information | Unknown | Alan M. Jette, Sargent College of Health and Rehabilitation Sciences, Boston University, Boston, MA 02215 E-mail: ajette@bu.edu. | https://www.bu.edu/sph/files/2011/06/LLFDI_Manual_2006_rev.pdf | Yes | Bingham KS, Kumar S, Dawson DR, Mulsant BH, Flint AJ. A systematic review of the measurement of function in late-life depression. The American Journal of Geriatric Psychiatry. 2018 Jan 1;26(1):54-72. Beauchamp M, Hao Q, Kuspinar A, Alder G, Makino K, Nouredanesh M, Zhao Y, Mikton C, Thiyagarajan JA, Diaz T, Raina P. Measures of perceived mobility ability in community-dwelling older adults: a systematic review of psychometric properties. Age and Ageing. 2023 Oct;52(Supplement_4):iv100-11. |
| Generic | Medicine-related burden | Living With Medicines Questionnaire | LMQ-3 | UK | 2014 | Measures the burden of using prescribed medicines. | 41 | 8 | Relationships with health professionals; Practicalities; Interferences; Effectiveness; Side effects; Concerns; Cost; Autonomy | Yes | Krska J, Morecroft CW, Rowe PH, Poole H. Measuring the impact of long-term medicines use from the patient perspective. International journal of clinical pharmacy. 2014 Aug;36:675-8. Krska J, Katusiime B, Corlett SA. Validation of an instrument to measure patients’ experiences of medicine use: the Living with Medicines Questionnaire. Patient preference and adherence. 2017 Mar 28:671-9. |
Yes | Yes, fees may apply | Professor Janet Krska Email; J.krska@kent.ac.uk | Nil | Yes | James KA, Cadel L, Hitzig SL, Guilcher SJ. Patient-reported outcome measures for medication-related quality of life: A scoping review. Research in Social and Administrative Pharmacy. 2022 Sep 1;18(9):3501-23. |
| Generic | Chronic conditions | Long-Term Conditions Questionnaire | LTCQ | UK | 2017 | To understand the impact of long term health conditions on peoples lives and to find out what support these people need. | 20 | No specific domains/dimensions identified | Yes | Potter CM, Batchelder L, Geneen L, Kelly L, Fox D, Baker M, Bostock J, Coulter A, Fitzpatrick R, Forder JE, Gibbons E. Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England. BMJ open. 2017 Nov 1;7(11):e019235. | Yes | Yes, fees may apply | https://innovation.ox.ac.uk/outcome-measures/long-term-conditions-quest… | Nil | Yes | Harding AJ, Morbey H, Ahmed F, Opdebeeck C, Elvish R, Leroi I, Williamson PR, Keady J, Reilly ST. A core outcome set for nonpharmacological community-based interventions for people living with dementia at home: a systematic review of outcome measurement instruments. The Gerontologist. 2021 Dec 1;61(8):e435-48. | |
| Generic | Pain | McGill Pain Questionnaire | MPQ | Canada | 1975 | To provide quantitative measures of clinical pain that capture its sensory, affective and other qualitative components, and allow statistical analysis of data collected during clinical research and practice. | 78 | 4 | Pain; Affective; Evaluative; Miscellaneous | Yes | Melzack R. The McGill Pain Questionnaire: major properties and scoring methods. Pain. 1975 Sep 1;1(3):277-99. | Yes | Unknown | https://eprovide.mapi-trust.org/instruments/mcgill-pain-questionnaire | Nil | None identified in March 2025 | None identified in March 2025 |
| Generic | Medication adherence, psychiatric patients | Medication Adherence Rating Scale | MARS | Australia | 2000 | To measure medication compliance with psychiatric patients. | 10 | 3 | Medication adherence behaviour; Attitudes to taking medication; Negative side effects and attitudes to psychotropic medication. | Yes | Thompson K, Kukarni J and Sergejew AA. Reliability and validity of a new Medication Adherence Rating Scale (MARS) for the psychoses. Schizophr Res., 2000; 42(3):241-247 | Yes | Unknown | K. Thompson, Mental Health Services for Kids and Youth, Locked Bag 10, Parkville Victoria 3052, Australia. Tel.: +61-3-9342-2804; fax: +61-3-9898-9629, knt@mhri.edu.au | Nil | None identified in March 2025 | None identified in March 2025 |
| Generic | Medication adherence | Morisky Medication Adherence Scale | MMAS-8 | USA | 2008 | To assess medication adherence. | 8 | No specific domains/dimensions identified | Yes | Morisky DE, Ang A, Krousel-Wood M, Ward HJ. Predictive validity of a medication adherence measure in an outpatient setting. J Clin Hypertens (Greenwich). 2008 May;10(5):348-54 | Yes | Yes, fees may apply | https://www.moriskyscale.com/mmas-license-pricing.html | Nil | Yes | Tegegn HG, Wark S, Tursan d’Espaignet E, Spark MJ. Measurement properties of patient-reported outcome measures for medication adherence in cardiovascular disease: a COSMIN systematic review. Clinical Drug Investigation. 2022 Nov;42(11):879-908. | |
| Generic | Pain | Negative Pain Thoughts Questionnaire | NPTQ | USA | 2008 | To assess negative cognitions about pain and misconceptions about medical treatments. | 11 | Yes | Vranceanu AM, Safren S, Cowan J, Ring D. The development of the negative pain thoughts questionnaire. Pain Pract. 2008 Sep-Oct;8(5):337-41 | No information | Unknown | Division of Health Care Policy and Research, Department of Health Sciences Research, Mayo Clinic, 200 First Street SW, Rochester, MN, 55905, USA | Nil | None identified in March 2025 | None identified in March 2025 | ||
| Generic | Known specific; Soft tissue injury; Disabled; COP; Alzheimer's disease; Stroke | Nottingham Health Profile | NHP | UK | 1981 | To provide a brief indication of a patient's perceived emotional social and physical health problems. | 45 | 6 | Sleep; Mobility; Energy; Pain; Emotional reactions; Social isolation | Yes | Hunt SM, McKenna SP, McEwen J, Williams J, Papp E. The Nottingham Health Profile: subjective health status and medical consultations. Social Science & Medicine. Part A: Medical Psychology & Medical Sociology. 1981 May 1;15(3):221-9. | Yes | Yes, fees may apply | https://www.galen-research.com/contact/ | Nil | Yes | Razvi S, McMillan CV, Weaver JU. Instruments used in measuring symptoms, health status and quality of life in hypothyroidism: a systematic qualitative review. Clinical Endocrinology. 2005 Dec;63(6):617-24. Dronavalli M, Thompson SC. A systematic review of measurement tools of health and well-being for evaluating community-based interventions. J Epidemiol Community Health. 2015 Aug 1;69(8):805-15. |
| Generic | HIV, elderly | Over The Counter Medication Impact Scale | OTC-MIS | USA | 2014 | To assess the impact of over the counter medication use on patients health related quality of life. | 8 | 8 | Physical functioning; Role physical; Bodily pain; General health; Vitality; Social functioning; Role emotional; Mental health | Yes | Mhatre SK, Sansgiry SS. Impact of Over-the-Counter Medication Use on Patients’ Health-Related Quality of Life: Development and Psychometric Validation of Over-the-Counter Medication Impact Scale. Clinical drug investigation. 2014 Apr;34:277-86. | No information | Unknown | Sujit S. Sansgiry, College of Pharmacy, University of Houston, 1441 Moursund Street, Houston, TX, 77030, USA. | Nil | Yes | James KA, Cadel L, Hitzig SL, Guilcher SJ. Patient-reported outcome measures for medication-related quality of life: A scoping review. Research in Social and Administrative Pharmacy. 2022 Sep 1;18(9):3501-23. |
| Generic | Activities of daily living | Oxford Participation and Activities Questionnaire | Ox-PAQ | UK | 2016 | To measure activity and participation in those with a chronic disease. | 23 | 3 | Routine activities; Emotionally wellbeing; Social engagement | Yes | Morley D, Dummett S, Kelly L, Dawson J, Fitzpatrick R, Jenkinson C. The Oxford Participation and Activities Questionnaire: study protocol. Patient Relat Outcome Measures. 2013 Dec 11;5:1-6. Kelly L, Jenkinson C, Dummett S, Dawson J, Fitzpatrick R, Morley D. Development of the Oxford Participation and Activities Questionnaire: constructing an item pool. Patient related outcome measures. 2015 May 21:145-55. Morley D, Dummett S, Kelly L, Dawson J, Fitzpatrick R, Jenkinson C. Validation of the Oxford participation and activities questionnaire. Patient Related Outcome Measures. 2016 Jun 15:73-80. |
Yes | Unknown | https://innovation.ox.ac.uk/outcome-measures/oxford-participation-activities-questionnaire-ox-paq/ | Nil | Yes | Ramdharry G, Buscemi V, Boaz A, Dawes H, Jaki T, Jones F, Marsden J, Paul L, Playle R, Randell E, Robling M. Proposing a core outcome set for physical activity and exercise interventions in people with rare neurological conditions. Frontiers in rehabilitation sciences. 2021 Oct 21;2:705474. |
| Generic | Activities of daily living | Oxford Physical Activity Questionnaire | OPAQ | UK | 2008 | To assess the activity patterns of adolescents. | 8 | No specific domains/dimensions identified | Yes | Lubans DR, Sylva K, Osborn Z. Convergent validity and test–retest reliability of the oxford physical activity questionnaire for secondary school students. Behaviour Change. 2008 Apr;25(1):23-34 | No information | Unknown | David Lubans, University of Newcastle, Faculty of Education and Arts, Callaghan Campus, NSW 2308, Australia. E-mail: David.Lubans@newcastle.edu.au | https://www.impactpe.eu/site/index.php/en/component/jdownloads/send/55-9-pa-sport-exercise-behav-in-after-school-settings/73-opaq-instructions-and-record-sheet?option=com_jdownloads | Yes | Rodrigues B, Encantado J, Carraça E, Martins J, Marques A, Lopes L, Sousa-Sá E, Cliff D, Mendes R, Santos R. Questionnaires measuring 24-hour movement behaviors in childhood and adolescence: Content description and measurement properties—a systematic review. Journal of Physical Activity and Health. 2022 Dec 6;20(1):50-76. | |
| Generic | Cancer; Palliative care conditions | Palliative Care Outcome Scale | POS | UK | 1999 | To measure palliative care needs of patients and their families. | 10 | 5 | Physical; Emotional; Psychological; Spiritual; Provision of information and support | Yes | Hearn J, Higginson IJ. Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group. BMJ Quality & Safety. 1999 Dec 1;8(4):219-27. | Yes | Unknown | www.pos-pal.org | Nil | Yes | van Roij J, Fransen H, van de Poll-Franse L, Zijlstra M, Raijmakers N. Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments. Quality of Life Research. 2018 Aug;27:1937-55. |
| Generic | Activities of daily living | Participation and Environment Measure for Children and Youth | PEM-CY | Canada | 2011 | To measure participation and impact of environmental factors on participation of children and young people with and without disabilities across home, school and community settings. | 25 | 3 | Home; Community; School | Yes | Coster W, Bedell G, Law M, Khetani MA, Teplicky R, Liljenquist K, Gleason K, KAO YC. Psychometric evaluation of the Participation and Environment Measure for Children and Youth. Developmental Medicine & Child Neurology. 2011 Nov;53(11):1030-7. | Yes | Yes, fees may apply | https://www.canchild.ca/en/shop/2-pem-cy-participation-and-environment-… | Nil | Yes | Quartermaine JR, Rose TA, Auld ML, Johnston LM. Participation measures that evaluate attendance and involvement for young people aged 15 to 25 years with cerebral palsy: a systematic review. Disability and Rehabilitation. 2024 Apr 23;46(9):1734-50. Rainey L, van Nispen R, van der Zee C, van Rens G. Measurement properties of questionnaires assessing participation in children and adolescents with a disability: a systematic review. Quality of Life Research. 2014 Dec;23:2793-808 |
| Generic | Chronic conditions | Patient Activation Measure | PAM | USA | 2004 | To assess patient knowledge, skill and confidence for self-management. | 13 | No specific domains/dimensions identified | Yes | Hibbard JH, Stockard J, Mahoney ER, Tusler M. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health services research. 2004 Aug;39(4p1):1005-26. | Yes | Unknown | www.cfepsurveys.com.au/our-surveys/patient-activation-measure/ | Nil | Yes | Ng QX, Liau MYQ, Tan YY, Tang ASP, Ong C, Thumboo J, Lee CE. A Systematic Review of the Reliability and Validity of the Patient Activation Measure Tool. Healthcare. 2024; 12(11):1079. https://doi.org/10.3390/healthcare12111079 | |
| Generic | Chronic conditions | Patient Assessment Of Chronic Illness Care | PACIC | USA | 2005 | To assess patient's receipt of clinical services and actions consistent with the Chronic Care Model (CCM). | 20 | 5 | Patient activation; Delivery system design; Goal setting; Problem solving; Follow-up/coordination | Yes | Glasgow RE, Wagner EH, Schaefer J, Mahoney LD, Reid RJ, Greene SM. Development and validation of the patient assessment of chronic illness care (PACIC). Medical care. 2005 May 1;43(5):436-44. | Public domain | Unknown | https://www.act-center.org/application/files/1016/3111/2006/Assessment_Patient_Assessment_of_Care_for_Chronic_Conditions.pdf | Yes | Wee PJ, Kwan YH, Loh DH, Phang JK, Puar TH, Østbye T, Thumboo J, Yoon S, Low LL. Measurement properties of patient-reported outcome measures for diabetes: systematic review. Journal of medical Internet research. 2021 Aug 13;23(8):e25002. | |
| Generic | Chronic conditions | Patient Experience With Treatment And Self-Management | PETS | USA | 2017 | General measure of patient treatment burden. | 48 | 9 | Medical information; Medications; Medical appointments; Monitoring health; Interpersonal challenges; Medical/health care expenses; Difficulty with health care services; Roll/social activity limitations; Physical/mental exhaustion | Yes | Eton DT, Yost KJ, Lai JS, Ridgeway JL, Egginton JS, Rosedahl JK, Linzer M, Boehm DH, Thakur A, Poplau S, Odell L. Development and validation of the Patient Experience with Treatment and Self-management (PETS): a patient-reported measure of treatment burden. Quality of Life Research. 2017 Feb;26:489-503. Rogers EA, Yost KJ, Rosedahl JK, Linzer M, Boehm DH, Thakur A, Poplau S, Anderson RT, Eton DT. Validating the Patient Experience with Treatment and Self-Management (PETS), a patient-reported measure of treatment burden, in people with diabetes. Patient Related Outcome Measures. 2017 Nov 9:143-56. |
No information | Unknown | David T. Eton, Division of Health Care Policy and Research, Department of Health Sciences Research, Mayo Clinic, 200 First Street SW, Rochester, MN, 55905, USA, eton.david@mayo.edu | Nil | None identified in March 2025 | None identified in March 2025 |
| Generic | Patient Generated Index | PGI | UK | 1994 | To describe individualised health-related quality of life, by allowing patients to generate their own perceived priority areas and their associated impacts. | 5 | No specific domains/dimensions identified | Yes | Ruta DA, Garratt AM, Leng M, Russell IT, MacDonald LM. A new approach to the measurement of quality of life: The Patient-Generated Index. Medical care. 1994 Nov 1;32(11):1109-26. | No information | Unknown | https://www.researchgate.net/profile/Danny_Ruta | Nil | Yes | Lindert J, Bain PA, Kubzansky LD, Stein C. Well-being measurement and the WHO health policy Health 2010: systematic review of measurement scales. The European Journal of Public Health. 2015 Aug 1;25(4):731-40. | ||
| Generic | Chronic conditions | Patient Perception Of Integrated Care | PPIC | USA | 2013 | Measure of the integration of care received by patients with a chronic illness. | 22 | 6 | Staff Knowledge about the Patient’s Medical History; Provider Support for the Patient’s Self-directed Care; Test Result Communication; Provider Knowledge of the Patient; Provider Support for Medication; Adherence and Home Health Management; Specialist Knowledge about the Patient’s Medical History | Yes | Singer SJ, Friedberg MW, Kiang MV, Dunn T, Kuhn DM. Development and preliminary validation of the Patient Perceptions of Integrated Care survey. Medical Care Research and Review. 2013 Apr;70(2):143-64. Friedberg MW, Edelen MO, Hirshman S, Kerrissey M, Basile AK, Tietschert MV, Elliott MN, Singer SJ. Development and psychometric analysis of the revised patient perceptions of integrated care survey. Medical Care Research and Review. 2021 Feb;78(1):68-76. |
No information | Unknown | Mark W. Friedberg, RAND Corporation, Boston, MA, USA, Brigham and Women’s Hospital, Boston, MA, USA, Harvard Medical School, Boston, MA, USA | Nil | None identified in March 2025 | None identified in March 2025 |
| Generic | Chronic disease, self-management | Patient-Reported Inventory of Self-Management of Chronic Conditions | PRISM-CC | Canada | 2022 | Assess patients' perceived difficulty in self managing different aspects of life with chronic conditions. | 36 | 7 | Resources; Process; Internal; Activity; Social interaction; Health behaviour; Disease controlling | Yes | Kephart G, Packer T, Audulv Å, Chen YT, Robinson A, Olsson I, Warner G. Item selection, scaling and construct validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) measurement tool in adults. Qual Life Res. 2022 Sep;31(9):2867-2880. doi: 10.1007/s11136-022-03165-4. Epub 2022 Jun 27. PMID: 35759127; PMCID: PMC9356954. | No information | Unknown | George KEPART email: george.kephart@dal.ca | Nil | None identified in March 2025 | None identified in March 2025 |
| Generic | Mental health, physical health | Patient-Reported Outcomes Measurement Information System - 29 Profile v2.1 | PROMIS-29 Profile v2.1 | USA | 2010 | To assess physical, mental, and social health. | 29 | 7 | Physical Function; Anxiety; Depression; Fatigue; Sleep Disturbance; Ability to participate in Social Roles and Activities; Pain Interference; Pain Intensity | Yes | Cella D, Riley W, Stone A, Rothrock N, Reeve B, Yount S, Amtmann D, Bode R, Buysse D, Choi S, Cook K. The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. Journal of clinical epidemiology. 2010 Nov 1;63(11):1179-94. | Yes | Unknown | https://www.healthmeasures.net/explore-measurement-systems/promis | https://prms.ceih.sa.gov.au/assets/library/PROMIS-29.pdf | Yes | Izadi Z, Gandrup J, Katz PP, Yazdany J. Patient-reported outcome measures for use in clinical trials of SLE: a review. Lupus Science & Medicine. 2018 Aug 1;5(1):e000279. |
| Generic | Activities of daily living | Pediatric Evaluation of Disability Inventory-Patient Reported Outcome | PEDI-PRO | USA | 2017 | To measure the functional performance of teens and young adults with intellectual and/or developmental disabilities, in discreet tasks that are required to participate in everyday life situations important for adulthood. | 72 | 3 | Daily activities; Social/cognitive; Mobility | Yes | Kramer JM, Schwartz A. Refining the Pediatric Evaluation of Disability Inventory-Patient-Reported Outcome (PEDI-PRO) item candidates: interpretation of a self-reported outcome measure of functional performance by young people with neurodevelopmental disabilities. Dev Med Child Neurol. 2017 Oct;59(10):1083-1088 Kramer JM, Schwartz AE. Development of the Pediatric Disability Inventory-Patient Reported Outcome (PEDI-PRO) measurement conceptual framework and item candidates. Scandinavian Journal of Occupational Therapy. 2018 Sep 3;25(5):335-46. Kramer JM, Ni P, Pfeiffer B, Persch A, Guerrero Calle F, Schwartz A, Barbour E, Davies DK. Psychometric properties of the Pediatric Evaluation of Disability Inventory–Patient Reported Outcome: A cognitively accessible measure of functional performance. Developmental Medicine & Child Neurology. 2024 Nov. Schwartz A, Guerrero Calle F, Barbour E, Persch A, Pfeiffer B, Davies DK, Mugele EJ, Kramer J. Interpretability and Clinical Utility of the Pediatric Evaluation of Disability Inventory-Patient Reported Outcome (PEDI-PRO) Score Report. Physical & Occupational Therapy In Pediatrics. 2025 Jan 2;45(1):22-40. |
Yes | Yes, fees may apply | www.pedipro.ablelinktech.com | Nil | None identified in March 2025 | None identified in March 2025 |
| Generic | Duchene muscular dystrophy; Neuro muscular disease; Asthma; Cardiac conditions; Rheumatology; Diabetes; Cancer | Pediatric Quality Of Life Inventory | PedsQL | USA | 2001 | To measure health-related quality of life in healthy children and adolescents and those with acute and chronic conditions. | 23 | 4 | Physical functioning; Emotional functioning; Social functioning; School functioning | Yes | Varni JW, Seid M, Kurtin PS. PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Medical care. 2001 Aug 1;39(8):800-12. | Yes | Yes, fees may apply | www.pedsql.org | Nil | Yes | Upton P, Lawford J, Eiser C. Parent-child agreement across child health-related quality of life instruments: a review of the literature. Qual Life Res. 2008 Aug;17(6):895-913. doi: 10.1007/s11136-008-9350-5. Epub 2008 Jun 3. PMID: 18521721. Solans M, Pane S, Estrada MD, Serra‐Sutton V, Berra S, Herdman M, Alonso J, Rajmil L. Health‐related quality of life measurement in children and adolescents: a systematic review of generic and disease‐specific instruments. Value in health. 2008 Jul;11(4):742-64. |
| Generic | Physical activity | Physical Activity Scale for the Elderly | PASE | USA | 1993 | To assess the level of physical activity in individuals over 65 years old. | 12 | 3 | Leisure activity; House hold activity; Work related activity | Yes | Washburn RA, Smith KW, Jette AM, Janney CA. The Physical Activity Scale for the Elderly (PASE): development and evaluation. J Clin Epidemiol. 1993 Feb;46(2):153-62 | Yes | Unknown | https://www.sralab.org/rehabilitation-measures/physical-activity-scale-elderly | Yes | Harding AJ, Morbey H, Ahmed F, Opdebeeck C, Elvish R, Leroi I, Williamson PR, Keady J, Reilly ST. A core outcome set for nonpharmacological community-based interventions for people living with dementia at home: a systematic review of outcome measurement instruments. The Gerontologist. 2021 Dec 1;61(8):e435-48. Sanchez-Lastra MA, Varela S, Martínez-Aldao D, Ayán C. Questionnaires for assessing self-perceived physical fitness: A systematic review. Experimental Gerontology. 2021 Sep 1;152:111463. |
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| Generic | Primary Care Outcomes Questionnaire | PCOQ | UK | 2018 | To measure a range of outcomes in primary care. | 24 | 4 | Health and wellbeing; Health knowledge and self care; Confidence in health provision; Confidence in health plan | Yes | Murphy M, Hollinghurst S, Cowlishaw S, Salisbury C. Primary Care Outcomes Questionnaire: psychometric testing of a new instrument. British Journal of General Practice. 2018 Jun 1;68(671):e433-40. | Yes | Yes, fees may apply | www.bristol.ac.uk/primaryhealthcare/resources/pcoq/ | Nil | None identified in March 2025 | None identified in March 2026 | |
| Generic | Overall health | PROMIS Global Health | PROMIS-GH | USA | 2009 | To gather patient perceptions of their general physical health. | 4 | Yes | Hays RD, Bjorner JB, Revicki DA, Spritzer KL, Cella D. Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Quality of life Research. 2009 Sep;18:873-80 | Yes | Unknown | https://www.healthmeasures.net/search-view-measures?task=Search.search | Nil | None identified in March 2025 | None identified in March 2025 | ||
| Generic | Postoperative | Quality Of Recovery-15 | QoR-15 | Australia | 2013 | To measure the early postoperative health status of patients after surgery or anaesthesia. | 15 | 5 | Pain; Physical comfort; Physical independence; Emotions; Psychological support | Yes | Stark PA, Myles PS, Burke JA. Development and psychometric evaluation of a postoperative quality of recovery score: the QoR-15. Anesthesiology. 2013 Jun;118(6):1332-40. | No information | Yes, fees may apply | https://pqip.org.uk/FilesUploaded/Myles%20QoR-15.pdf | Yes | Myles PS, Shulman MA, Reilly J, Kasza J, Romero L. Measurement of quality of recovery after surgery using the 15-item quality of recovery scale: a systematic review and meta-analysis. British Journal of Anaesthesia. 2022 Jun 1;128(6):1029-39. Kleif J, Waage J, Christensen KB, Gögenur I. Systematic review of the QoR-15 score, a patient-reported outcome measure measuring quality of recovery after surgery and anaesthesia. British journal of anaesthesia. 2018 Jan 1;120(1):28-36. |
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| Generic | Mental health | Recovering Quality of Life | ReQoL | UK | 2018 | To assess the quality of life of people with different mental health conditions. | 20 | No specific domains/dimensions identified | Yes | Keetharuth AD, Brazier J, Connell J, Bjorner JB, Carlton J, Taylor Buck E, Ricketts T, McKendrick K, Browne J, Croudace T, Barkham M. Recovering Quality of Life (ReQoL): a new generic self-reported outcome measure for use with people experiencing mental health difficulties. Br J Psychiatry. 2018 Jan;212(1):42-49 | Yes | Yes, fees may apply | www.innovation.ox.ac.uk | Nil | Yes | Łaszewska A, Helter TM, Nagel A, Perić N, Simon J. Patient-reported outcome measures suitable for quality of life/well-being assessment in multisectoral, multinational and multiperson mental health economic evaluations. BMJ Ment Health. 2022 May 1;25(2):85-92. | |
| Generic | Self-Efficacy for Home Exercise Programs Scale | SEHEPS | USA | 2019 | To evaluate a patient's self-efficacy in home-based musculoskeletal exercise programs. | 12 | No specific domains/dimensions identified | Yes | Picha KJ, Lester M, Heebner NR, Abt JP, Usher EL, Capilouto G, Uhl TL. The Self-Efficacy for Home Exercise Programs Scale: Development and Psychometric Properties. J Orthop Sports Phys Ther. 2019 Sep;49(9):647-655. doi: 10.2519/jospt.2019.8779. Epub 2019 Jul 10. PMID: 31291552. | Yes | Unknown | Dr Kelsey Picha, 5850 East Still Circle, Mesa, AZ 85206. | Nil | None identified in March 2025 | None identified in March 2025 | ||
| Generic | Mental health | Sense of Coherence Scale | SOC-29 | Israel | 1993 | To assess sense of coherence, defined as a person's view of life and capacity to respond to stressful situations. | 29 | 3 | Comprehensibility; Manageability; Meaningfulness | Yes | Antonovsky A. The structure and properties of the sense of coherence scale. Soc Sci Med. 1993 Mar;36(6):725-33 | Yes | Unknown | A Antonovsky, Department of the Sociology of Health, Faculty of Health Sciences, Ben-Gurion University of the Negev, Beersheba, Israel | Nil | Yes | Dronavalli M, Thompson SC. A systematic review of measurement tools of health and well-being for evaluating community-based interventions. J Epidemiol Community Health. 2015 Aug 1;69(8):805-15. |
| Generic | Bipolar disorder | Sheehan Disability Scale | SDS | USA | 1983 | To measure the global impact of mental illness on functioning. | 3 | 3 | Work/school; Social life/leisure; Family life/home responsibility | Yes | Arbuckle R, Frye MA, Brecher M, Paulsson B, Rajagopalan K, Palmer S, Degl'Innocenti A. The psychometric validation of the Sheehan Disability Scale (SDS) in patients with bipolar disorder. Psychiatry research. 2009 Jan 30;165(1-2):163-74. | Yes | Unknown | www.davidvsheehan.org | Nil | Yes | Bingham KS, Kumar S, Dawson DR, Mulsant BH, Flint AJ. A Systematic Review of the Measurement of Function in Late-Life Depression. Am J Geriatr Psychiatry. 2018 Jan;26(1):54-72. doi: 10.1016/j.jagp.2017.08.011. Epub 2017 Aug 30. PMID: 29050912. Mateen BA, Doogan C, Hayward K, Hourihan S, Hurford J, Playford ED. Systematic review of health-related work outcome measures and quality criteria-based evaluations of their psychometric properties. Archives of physical medicine and rehabilitation. 2017 Mar 1;98(3):534-60 |
| Generic | Quality of Life | Short Form 36 (SF-36) Health Survey | SF-36 | USA | 1992 | To measure generic health concepts relevant across age, disease, and treatment groups. | 36 | 8 | Vitality; Physical functioning; Bodily pain; General health perceptions; Physical role functioning; Emotional role functioning; Social role functioning; Mental health | Yes | Brazier JE, Harper R, Jones NM, O'Cathain A, Thomas KJ, Usherwood T, Westlake L. Validating the SF-36 health survey questionnaire: new outcome measure for primary care. British medical journal. 1992 Jul 18;305(6846):160-4. | PubliclYes available | Unknown | https://www.rand.org/health-care/surveys_tools/mos/36-item-short-form/terms.html | Yes | Pathak A, Wilson R, Sharma S, Pryymachenko Y, Ribeiro DC, Chua J, Abbott JH. Measurement properties of the patient-specific functional scale and its current uses: an updated systematic review of 57 studies using COSMIN guidelines. journal of orthopaedic & sports physical therapy. 2022 May;52(5):262-75. | |
| Generic | Pain | Short Form-Mcgill Pain Questionnaire-2 | SF-MPQ-2 | USA | 2009 | To provide a comprehensive measure of pain symptoms of both neuropathic and non-neuropathic pain conditions. | 22 | 4 | Continuous pain; Intermittent pain; Predominantly neuropathic pain; Affective descriptors | Yes | Dworkin RH, Turk DC, Revicki DA, Harding G, Coyne KS, Peirce-Sandner S, Bhagwat D, Everton D, Burke LB, Cowan P, Farrar JT, Hertz S, Max MB, Rappaport BA, Melzack R. Development and initial validation of an expanded and revised version of the Short-form McGill Pain Questionnaire (SF-MPQ-2). Pain. 2009;144:35-42 | Yes | Yes, fees may apply | Robert Dworkin. Tel.: +1 585 275 3524; fax: +1 585 473 5007.E-mail address:robert_dworkin@urmc.rochester.edu(R.H. Dworkin) | Nil | Yes | Packham T, MacDermid JC, Henry J, Bain J. A systematic review of psychometric evaluations of outcome assessments for complex regional pain syndrome. Disability and Rehabilitation. 2012 Jun 1;34(13):1059-69. Jumbo SU, MacDermid JC, Kalu ME, Packham TL, Athwal GS, Faber KJ. Measurement properties of the Brief Pain Inventory-Short Form (BPI-SF) and Revised Short McGill Pain Questionnaire Version-2 (SF-MPQ-2) in pain-related musculoskeletal conditions: a systematic review. The Clinical Journal of Pain. 2021 Jun 1;37(6):454-74. |
| Generic | Activities of daily living | The Impact On Life Questionnaire | IoL | New Zealand | 2016 | To assess the overall impact of health conditions on a patient’s activities of daily living, assuming that a condition may affect several domains concurrently. Originally developed for use with cataract patients but validated among those awaiting orthopaedic surgery. | 6 | 6 | Social interaction; Personal interaction; Ability to fulfil responsibilities to others; Personal care; Personal safety; Leisure activities | Yes | Chan G, Bezuidenhout L, Walker L, Rowan R. The Impact on Life questionnaire: validation for elective surgery prioritisation in New Zealand prioritisation criteria in orthopaedic surgery. The New Zealand Medical Journal (Online). 2016 Apr 1;129(1432):26. | No information | Unknown | Robert Rowan, Wellington Hospital, Riddiford Street, Newtown, Wellington 6035. robert.rowan@ccdhb.org.nz. | Nil | None identified in March 2025 | None identified in March 2025 |
| Generic | Activities of daily living | Upper Limb Functional Index | ULFI | Australia | 2006 | To assess health-related quality of life and upper extremity dysfunction (upper limb status and impairment). | 25 | No specific domains/dimensions identified | Yes | Gabel CP, Michener LA, Burkett B, Neller A. The Upper Limb Functional Index: development and determination of reliability, validity, and responsiveness. J Hand Ther. 2006 Jul-Sep;19(3):328-48 Gabel CP, Michener LA, Melloh M, Burkett B. Modification of the upper limb functional index to a three-point response improves clinimetric properties. Journal of Hand Therapy. 2010 Jan 1;23(1):41-52. |
Yes | Unknown | Charles Philip Gabel, MSc, Faculty of Science, Centre for Healthy Activities, Sport and Exercise, University of the Sunshine Coast, PO Box 760, Coolum Beach, Queensland 4573, Australia; cp.gabel@bigpond.com | Nil | Yes | Wiitavaara B, Florin J. Content and psychometric evaluations of questionnaires for assessing physical function in people with arm–shoulder–hand disorders. A systematic review of the literature. Disability and Rehabilitation. 2022 Nov 20;44(24):7575-86. | |
| Generic | Veterans RAND 36-Item Health Survey | RAND-36, VR-36 | USA | 1999 | To measure health related quality of life. | 36 | 8 | Physical functioning; Role limitations due to physical health; Role limitations due to emotional problems; Energy/fatigue; Emotional well-being; Social functioning; Pain; General Health | Yes | Kazis LE, Ren XS, Lee A, Skinner K, Rogers W, Clark J, Miller DR. Health status in VA patients: results from the Veterans Health Study. American Journal of Medical Quality. 1999 Jan 1;14(1):28-38. | PubliclYes available | Unknown | https://www.bu.edu/sph/research/centers-and-groups/vr-36-vr-12-and-vr-6d/request-access/ | Nil | Yes | Atkinson TM, Stover AM, Storfer DF, Saracino RM, D'Agostino TA, Pergolizzi D, Matsoukas K, Li Y, Basch E. Patient-reported physical function measures in cancer clinical trials. Epidemiologic reviews. 2017 Jan 1;39(1):59-70. Aber A, Poku E, Phillips P, Essat M, Buckley Woods H, Palfreyman S, Kaltenthaler E, Jones G, Michaels J. Systematic review of patient-reported outcome measures in patients with varicose veins. Journal of British Surgery. 2017 Oct;104(11):1424-32. |
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| Generic | Mental wellbeing | WHO (Five) Well-Being Index | WHO-5 | Denmark | 2003 | To measure positive psychological well-being. | 5 | No specific domains/dimensions identified | Yes | Bech P, Olsen RL, Kjoller M, Rasmussen NK. Measuring well-being rather than the absence of distress symptoms: a comparison of the SF-36 Mental Health subscale and the WHO-Five Well-Being Scale. Int J Meth Psychiatr Res 2003; 85-91 | Yes | Unknown | Psychiatric Research Unit, WHO Collaborating Centre, Frederiksborg General Hospital | https://cdn.who.int/media/docs/default-source/mental-health/who-5_engli… | Yes | McDowell I. Measures of self-perceived well-being. Journal of psychosomatic research. 2010 Jul 1;69(1):69-79. | |
| Generic | Work Productivity And Activity Impairment Questionnaire: General Health | WPAI-GH | USA | 1993 | To measure impairments over the past 7 days in both paid work and unpaid work due to one’s health. | 6 | 4 | Presenteeism; Activity impairment; Absenteeism; Overall work productivity | Yes | Reilly MC, Zbrozek AS, Dukes EM. The validity and reproducibility of a work productivity and activity impairment instrument. Pharmacoeconomics. 1993 Nov;4(5):353-65. | PubliclYes available | Unknown | http://www.reillyassociates.net/WPAI_General.html | Yes | Prasad M, Wahlqvist P, Shikiar R, Tina Shih YC. A review of self-report instruments measuring health-related work productivity: a patient-reported outcomes perspective. Pharmacoeconomics. 2004 Mar;22:225-44. Lofland JH, Pizzi L, Frick KD. A review of health-related workplace productivity loss instruments. Pharmacoeconomics. 2004 Feb;22:165-84. |
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| Generic | Disability | World Health Organization Disability Assessment Schedule 2.0 | WHODAS 2.0 | Switzerland | 2010 | To assess health and disability across conditions, to identify patient needs and measure clinical outcomes and treatment effectiveness. | 36 | 6 | Cognition - understanding and communication; Mobility - moving and getting around; Self-care - hygiene, dressing, eating and staying alone; Getting along - interacting with other people; Lifestyle activities - domestic responsibilities, leisure, work and school; Participation - joining in community activities | Yes | Üstün TB, Chatterji S, Kostanjsek N, Rehm J, Kennedy C, Epping-Jordan J, Saxena S, Korff MV, Pull C. Developing the World Health Organization disability assessment schedule 2.0. Bulletin of the World Health Organization. 2010;88:815-23. | PubliclYes available | Unknown | T Bedirhan Üstün, e-mail: ustunb@who.int | https://www.who.int/standards/classifications/international-classification-of-functioning-disability-and-health/who-disability-assessment-schedule | Yes | Jamshidi F, Farzad M, MacDermid JC, Varahra A, Hosseini SA, Asgarabad MH. Assessing the content based on ICF and quality based on COSMIN criteria of patient-reported outcome measures of functioning in breast cancer survivors: a systematic review. Breast Cancer. 2022 May;29(3):377-93. Ritchie L, Wright-St Clair VA, Keogh J, Gray M. Community integration after traumatic brain injury: a systematic review of the clinical implications of measurement and service provision for older adults. Archives of Physical Medicine and Rehabilitation. 2014 Jan 1;95(1):163-74. |
| Generic | Health related quality of life | World Health Organization Quality Of Life assessment | WHOQOL-100 | UK | 1998 | To provide an appropriate cross-cultural assessment of quality of life. | 100 | 7 | Physical health (pain and discomfort; energy and fatigue; sleep and rest); Psychological health (positive affect; thinking, learning, memory and concentration; self-esteem; body image and appearance; negative affect); Level of independence (mobility; activities of daily living; dependence on medication or treatments; working capacity); Social relationships (personal relationships; social support; sexual activity); Environment (physical safety and security; home environment; financial resources; health and social care: accessibility and quality; opportunities for acquiring new information and skills; participation in and opportunities for recreation/leisure activities; physical environment (pollution, noise, traffic, climate); transportation); Spiritual domain; Overall quality of life and general health | Yes | The WHOQOL Group. The World Health Organization quality of life assessment (WHOQOL): development and general psychometric properties. Social science & medicine. 1998 Jun 15;46(12):1569-85. The WHOQOL Group. Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological medicine. 1998 May;28(3):551-8. |
Yes | Unknown | Copyright information: © The World Health Organisation; Mick Power, University of Edinburgh, Royal Edinburgh Hospital, Department of Psychiatry, Kennedy Tower, Morningside Park, Edinburgh EH10 5HF, U.K | https://www.who.int/tools/whoqol/whoqol-100 | Yes | Gallacher KI, Quinn T, Kidd L, Eton D, Dillon M, Elliot J, Johnston N, Erwin PJ, Mair F. Systematic review of patient-reported measures of treatment burden in stroke. BMJ open. 2019 Sep 1;9(9):e029258. Patient-Reported Outcome Measures for Health-Related Quality of Life in Patients With Psoriasis: A Systematic Review |