Full PROMs list - Generic and Conditions-specific

This list features both generic and condition-specific validated Patient-Reported Outcome Measures (PROMs), identified from peer-reviewed literature published between 1989 and 2024.

Download the full PROMs list

Selecting a PROM

There are hundreds of PROMs available, and the development of new PROMs is increasing.

It is important to consider which PROM is right for your needs:

Generic PROMs: Generic PROMs include measures that are suitable for use across healthcare settings and conditions that were referred to in literature published from 1989 to 2024.
Conditions-specific PROMs: Condition-specific PROMs include measures for a selection of high-burden conditions. These conditions were referred to in literature published between 1989 to 2024. The Commission will add to this list over time.

We currently have PROMs for:

High burden cancers	lung cancer, bowel cancer, breast cancer, prostate cancer, pancreatic cancer, brain and central nervous system cancer
Cardiovascular diseases	coronary heart disease, stroke, atrial fibrillation and flutter, non-rheumatic valvular disease, cardiomyopathy and hypertension
Mental health disorders	anxiety, depression, psychological distress and alcohol use disorders
Musculoskeletal conditions	back pain and problems, osteoarthritis and rheumatoid arthritis
Injuries and trauma	burns, brain injury and orthopaedic trauma
Respiratory diseases	chronic obstructive pulmonary disease and asthma
Neurological conditions	dementia, epilepsy, migraine, Parkinson’s disease and Alzheimer's disease
Gastrointestinal diseases	chronic liver disease and inflammatory bowel disease
Endocrine disorders	diabetes
Oral disorders	dental caries and severe tooth loss
Hearing and vision disorders	hearing loss and vision loss
Skin disorders	dermatitis, pressure injuries and eczema
Infectious diseases	HIV/ AIDs and influenza
Kidney and urinary diseases	chronic kidney disease
Blood and metabolic disorders	iron-deficiency anaemia
Reproductive and maternal conditions	genital prolapse and polycystic ovarian syndrome

Inclusion and exclusion

PROMs were included if they met the following criteria:

It is a standardised instrument/survey/method for measuring patient-reported health outcome
It has been validated (i.e., there is published information on validation, see below)
Validation analyses were conducted on an English language version of the instrument, either in the original validation paper or subsequently, and
It assesses generic health status OR is a disease-specific PROM from one of the identified conditions.
Experience and satisfaction surveys, while related, were excluded if they were not explicitly used to measure health outcomes (e.g., symptoms, quality of life, or functional status).

Included conditions

The identified conditions were developed based on the Australian Institute of Health and Welfare’s list of chronic diseases and burden of disease data. Issues or conditions that potentially had a low likelihood of having a PROM because they were too broad, contained residual or non-specific terminology (e.g. other gastrointestinal infections) or were difficult to capture information from the patient (e.g. infant conditions), were subject to a preliminary scope to identify possibility of PROMs. No information on PROMs for these issues/conditions were found; accordingly, they were removed.

Validation requirements

A tool was deemed validated (and therefore eligible for inclusion) if there was published statistical analyses adequately establishing the reliability and validity of the scale/s. Analyses of reliability usually includes test-retest reliability and internal consistency (usually measured through Cronbach’s alpha). Analyses of validity may include construct validity, criterion-related validity, and analyses of known-group differences. Establishment of content or face validity, which typically involves preliminary surveys about patients’ priorities or qualitative interviews and are used in the early stages to refine questions/items, were not considered sufficient for a PROM to be deemed validated.

Further information

For further information please email us.

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